• Report on New Variant CJD in Eastern England (November 2009)

    Click herehttp://www.foodsafetypolicy.com Variant CJD in Eastern England (November 20009) See www.itvlocal.com/

    published: 05 Jan 2010
  • Human 'Mad Cow Disease' (CJD) News Report No. 2

    Click herehttp://www.foodsafetypolicy.com On December 2007, at just 24 years of age, Andy Black died after suffering from the human form of mad cow's disease vCJD (variant Creutzfeldt-Jakob Disease). Andy worked in the media producing/researching programmes for talkSPORT Radio, BBC, and ITV. During his terrible last days and at his request Christine Lord made it her mission to find out "Who killed my son?" and with the BBC, she produced a documentary exposing the key players at the centre of the BSE crisis whose actions and decisions led to his untimely and avoidable death. The Documentary is at http://www.youtube.com/watch?v=MAJTr6Nxxa0 Christine Lord, as Andy's mum and a freelance journalist continues to research the scandal - and its links between school meals, (state and indepen...

    published: 01 Oct 2013
  • Human 'Mad Cow Disease' (CJD) News Report

    Click herehttp://www.foodsafetypolicy.com *** On 16th December 2007, at just 24 years of age, Andy Black died after suffering from the human form of mad cow's disease vCJD (variant Creutzfeldt-Jakob Disease). Andy worked in the media producing/researching programmes for talkSPORT Radio, BBC, and ITV. During his terrible last days and at his request Christine Lord made it her mission to find out "Who killed my son?" and with the BBC, she produced a documentary exposing the key players at the centre of the BSE crisis whose actions and decisions led to his untimely and avoidable death. The Documentary is at http://www.youtube.com/watch?v=MAJTr6Nxxa0 Christine Lord, as Andy's mum and a freelance journalist continues to research the scandal - and its links between school meals, (state...

    published: 29 Nov 2008
  • Report on UK variant CJD in a second genetic type (2008)

    Click herehttp://www.foodsafetypolicy.com/comment-variant-cjd-in-second-genetic-type to find out more.

    published: 02 Jul 2010
  • Variant CJD and Hepatitis C Victims - 27th October 2000

    Variant CJD and Hepatitis C Victims - 27th October 2000 On 26th October 2000, the official report on how the BSE scandal happened was released - now comes the battle over the level of compensation - it could range from £50,000 to a quarter of a million. Lawyers and families of those who have died or are dying of the human form of BSE, vCJD, will meet Government officials on Wednesday 1st November 2000. Today the victims of another medical disaster - the thousands of Haemophiliacs who've contracted Hepatitis C, have renewed their demands for compensation.

    published: 28 Jan 2011
  • Confronting CJD & other Prion Disoders

    For more information, please visit us at http://www.cjdfoundation.org

    published: 08 Nov 2013
  • Creutzfeldt-Jakob disease (CJD)

    Video of a patient suffering from Creutzfeldt-Jakob disease (CJD). For Doctors - Visit http://doctorshangout.com/video/video/show?id=2002836%3AVideo%3A92991 For Patients - Join http://www.patient.org.in - It is a health based social network of people sharing their disease experiences, treatment options, knowledge and giving support to other people suffering from similar health problems.

    published: 21 Aug 2008
  • Are we moving closer to treating CJD?

    Until now there has been no cure and those afflicted are guaranteed a slow and painful death. But now scientists have announced that they have made a step towards finding a treatment for Creutzveldt Jacob disease - CJD.

    published: 24 Jun 2013
  • CJD Brain Killer Documentary

    WTHR from Indianpolis aired this documentary in the Fall of 2006. My brother was Zane Mingus.

    published: 04 Jul 2008
  • Cure CJD: Julie's Story

    Creutzfeldt-Jakub Disease, or CJD, is probably something that you've never heard of. But with a mortality rate of 100%, perhaps you should. A rare, degenerative brain condition, CJD is only diagnosed around 100 times a year in the UK. Without a cure, those suffering the disease are usually given just 12 months to live. Julie Robinson was diagnosed with CJD in October 2016, the same month that she was given the all clear from breast cancer. Doctors have given her 12 months to 5 years to live. What makes this even more harrowing, is that Julie has contracted the 'inherited' form of CJD, meaning that her children, Jamie and Jemma, and her young grandchildren are at risk of being diagnosed with the disease. This video features Julie, her husband John, and some of her closest friends, discuss...

    published: 26 Apr 2017
  • TRAILER #1 FOR "ONE IN A MILLION: A CJD DOCUMENTARY"

    I am making a documentary about Creutzfeld-Jakob Disease. I am shooting and editing it myself while I am getting tested for the genetic mutation that killed my grandfather and just this year - my mother. Along the way, I will meet the doctors and researchers working to find a cure for this untreatable, 100% fatal brain disease. I will also meet other families that have suffered the painful loss of their loved ones to this cruel disease.

    published: 10 Jul 2013
  • C.J.D 2016 Montpellier

    Aperçu de la soirée prestige du centre des jeunes dirigeants de Montpellier.

    published: 17 Jan 2017
  • Creutzfeldt-Jakob Disease Report from 2010

    See http://www.foodsafetypolicy.com CJD Research Campaign from October 2011 Two decades on since BSE or mad cow disease hit the headlines, a father of a victim of its form in humans, new variant CJD, wants the government to maintain research into the degenerative condition. Recent research suggests up to 1 in 1000 people could still be affected. *** Creutzfeldt--Jakob disease or CJD is a degenerative neurological disorder (brain disease) that is incurable and invariably fatal.CJD is at times called a human form of mad cow disease, given that bovine spongiform encephalopathy is believed to be the cause of variant Creutzfeldt--Jakob disease in humans. CJD is the most common among the types of transmissible spongiform encephalopathy found in humans. In CJD, the brain tissue develops hol...

    published: 12 Sep 2011
  • CJD, A Personal Story

    Steve, a California physician, whose wife spontaneously developed CJD, shares his experiences as a husband and caregiver. CJD is a rapidly progressive dementia whose study may yield important insights about other, more prevalent dementias. We thank Steve and his children for sharing their stories. Their contribution has contributed to a growing awareness about CJD. This film has been entered into the 2010 Neuro Film Festival from the American Academy of Neurology Foundation at www.neurofilmfestival.com. Let's put our brains together and support brain research!

    published: 17 Feb 2010
  • Prion Disease and CJD Vaccination Approaches by Thomas Wisniewski

    Discussing vaccination approaches for Prion Diseases, CJD, and related disorders, Dr. Thomas Wisniewski sheds light on how to solve the dilemmas of Creutzfeldt-Jakob Disease and similar disorders. Thomas Wisniewski: Professor of neurology, Personal Chair in Clinical Neurology, University of Edinburgh; consultant neurologist, Western General Hospital, Founder and Former director, National CJD Surveillance Unit, United Kingdom, Edinburgh, Scotland. 0:00 - Introduction 0:31 - Conformational Disorders 0:59 - Prion Disease Active Vaccination 2:05 - Salmonella Vaccines for Prion Infection 2:54 - Chronic Wasting Disease (CWD) 5:09 - Saliva Sampling and Tonsillar Biopsy 7:37 - Conclusions of Prion Disease Vaccination 8:01 - Immunotherapeutic Approches for AD 16:12 - Conclusions of Monoclonal Ab...

    published: 03 Sep 2015
  • A Matter of Time - living with familial CJD

    published: 13 Feb 2017
  • Blood Test Breakthrough for Variant CJD - 13th January 2012

    Friday 13th January 2012 - Victoria Macdonald - Heath & Social Care Correspondent Christine Lord's website is www.justice4andy.com A blood test for variant CJD is for the first time being offered to patients from around the UK and some from abroad who are suspected of having what was once known as mad cow disease. A notification has been sent to neurologists around the country from the NHS National Prion Clinic and the Medical Research Council's Prion Unit saying that the blood test is now available. Between five and 10 samples a week are now being sent in from here and other countries where there have been cases of vCJD. Professor John Collinge, who has been part of the team developing the blood test, said that so far the test had not produced any false positive results - that...

    published: 14 Jan 2012
  • CJD Disease -- What it Really is and How Someone Gets It!

    http://utahtexans.com/ Click on the link above for a free video guide to dietary supplements and herbal remedies! In this video I'm going to be answering the question what is CJD disease, and I will be giving you some ideas on how not to get it. CJD is the short and easy way of saying Critzfelt Yacob Disease, and it's is a brain disorder that leads to memory problems, and eventually death. Usually CJD Disease affects the elderly, this includes a person over the age of 60 and 9 out of 10 people that get diagnosed with it die within about a year. One of the good news about this disease is that it's very rare. In fact only around 300 cases are seen every year in the United States. Unfortunately because this ailment is so hard to diagnose there may be many more cases that do take place...

    published: 13 May 2014
  • CJD Creutzfeldt-Jakob Disease - Mayo Clinic

    There is a disease that strikes just 300 Americans each year. Yet, it is a nightmare that some have described as a lightening quick version of Alzheimer's & Parkinson's diseases combined. For families losing loved ones, research holds the only hope. Here's Dennis Douda for Medical Edge.

    published: 05 Sep 2012
  • Creutzfeldt-Jakob Disease (CJD) Q&A | Byron Caughey, Glenn Telling, Thomas Wisniewski, Robert Will

    During the Creutzfeldt-Jakob Disease (CJD) question and answer discussion board, leading experts on Prion Disease and similar disorders comment on what CJD is, discuss vaccination approaches to Prion Disease and talk about other aspects of Creutzfeldt-Jakob disease. Prion Disease and CJD Discussion Board: Byron Caughey, Glenn Telling, Thomas Wisniewski, and Robert Will 0:34 - Testing CJD Disease Results 1:31 - Creutzfeldt-Jakob Disease Test Turnout Time 5:00 - CJD Infection Analysis 8:42 - Pre-CJD Symptoms 14:11 - CWD Prevention 22:35 - CWD Immunity 27:24 - How to Detect CWD and Related Diseases 31:01 - Early Detection of CJD and Prion Disease 36:37 - Learning About CJD Through Similar Diseases -- Watch more from this conference at: 2015 CJD Foundation Family Conference Playlist: http:/...

    published: 03 Sep 2015
  • CJD : Film de présentation (version courte)

    published: 15 Dec 2014
  • Creutzfeldt Jakob Disease - Hadaya Gelle

    Human Diseases Fourth Quarter Project By: Hadaya Gelle Period 6 Transcript: Creutzfeldt-Jakob Disease is a rare, degenerative, fatal brain disorder that affects one in every million. It belongs to the transmissible spongiform encephalopathies (TSEs) family of human and animal diseases. The onset of this disease usually occurs at about 60 years of age and 90% of sufferers usually die within the first year of having the disease. Creutzfeldt-Jakob Disease is broken down into 3 categories: Sporadic, Hereditary, and Acquired. Sporadic CJD is the most common and affects about 80% of the people diagnosed. There aren’t any risk factors that can lead you to have this type. Hereditary CJD affects 5-10% of the people diagnosed and is caused by a genetic mutation. Acquired CJD is the least commo...

    published: 13 May 2017
  • Creutzfeldt-Jakob Disease (CJD) In memory of Davey L. Kock

    This video provides basic information about Creutzfeldt-Jakob Disease (CJD), a rare, 100% fatal, degenerative brain disease. Davey L Kock passed away on September 25, 2012 from CJD. His family and friends are hosting a fundraiser with a pork loin supper, raffle, silent and live auctions, and a dance on November 16, 2013, which would have been Davey's 55th birthday. We invite you to join us as we raise funds that will go towards a research grant in Davey's name to help find a treatment and cure for CJD as well as provide support for families who currently are and will in the future be affected by this disease. Find out more information about the event here: https://www.facebook.com/events/216186431875888/ If you are unable to attend and would still like to give, you can do so here: htt...

    published: 31 Oct 2013
  • Creutzfeldt-Jakob disease, Human Mad Cow Disease, Kuru, Scrapies, CJD, BSE

    published: 16 Dec 2016
  • Ernie's Story: Creutzfeldt-Jakob Disease

    This film has been entered into the 2016 Neuro Film Festival at NeuroFilmFestival.com. Ernie's Story is a short film focusing on the need for awareness and research for Creutzfeldt-Jakob Disease. A disease that is considered rare and therefore receives little attention or funding for research. Currently there are 7 states in the US that does not mandate CJD as a reportable disease. This not only effects reported cases, it hurts chances for research through autopsies. CJD is a disease that is devastating and has no treatment or cure. Patients on an average live less than a year after initial symptoms. This film focuses on Ernie Donahue that passed away from CJD last year at the young age of 41. A gentle, kind man that received the greatest joy from helping others. We hope that hearing Ern...

    published: 02 Mar 2016
  • Prion Disease | Gerstmann-Straussler Scheinker (GSS) Syndrome by Julia Moreno

    Discussing the specific Prion Disease, Gerstmann-Straussler Scheinker (GSS) Syndrome, Julia Moreno showcases her studies on the role of Cellular Chaperons, and the Unfolded Protein Response in the Gerstmann-Straussler Scheinker (GSS) Syndrome. 0:30 - Human Prion Disease Types 1:29 - Gerstmann-Straussier Scheinker (GSS) 2:30 - Spontaneous Neurodegenerative Disease in Tg(GSS)mice 4:15 - Mis-folds During Prion Disease 5:57 - Hypothesis 6:15 - Generation of Susceptible (S) and Resistant (R) Cells Study 7:46 - Identification of Differences between S and R Cells 9:07 - PANTHER Analysis 15:27 - Conclusions -- Watch more from this conference at: 2015 CJD Foundation Family Conference Playlist: http://bit.ly/cjd-2015 Individual Presentations: Byron Caughey - Detecting Prions: http://bit.ly/cjd-cau...

    published: 03 Sep 2015
  • Detecting Prions and Diagnosing Prion Diseases by Byron Caughey

    "Progress in Detecting Prions and Diagnosing Prion Diseases" is lectured at the CJD foundation 2015 conference by Byron Caughey. Discussing Creutzfeldt-Jakob Disease (CJD) and other Prion diseases, Bryon Caughey helps shed some light on these health issues. Byron Caughey is from the Laboratory of Persistent Viral Diseases, NIH/NIAID Rocky Mountain Laboratories, Hamilton, Montana. Caughey discusses the progress being made to diagnose various protein misfolding diseases in living humans. Topics discussed include: prion diseases, transmissible spongiform encephalopathies, chronic wasting disease, neurodegenerative diseases, bank voles, sporadic CJD,familial CJD, scrapie, GSS, fatal familial insomnia, iatrogenic CJD,. dura mater transplant, growth hormone injections, kuru in New Guinea, pro...

    published: 25 Aug 2015
  • Creutzfeldt-Jakob Disease (CJD) Q&A | Byron Caughey, Glenn Telling, Thomas Wisniewski, Robert Will

    During the Creutzfeldt-Jakob Disease (CJD) question and answer discussion board, leading experts on Prion Disease and similar disorders comment on what CJD is, discuss vaccination approaches to Prion Disease and talk about other aspects of Creutzfeldt-Jakob disease. Prion Disease and CJD Discussion Board: Byron Caughey, Glenn Telling, Thomas Wisniewski, and Robert Will 0:34 - Testing CJD Disease Results 1:31 - Creutzfeldt-Jakob Disease Test Turnout Time 5:00 - CJD Infection Analysis 8:42 - Pre-CJD Symptoms 14:11 - CWD Prevention 22:35 - CWD Immunity 27:24 - How to Detect CWD and Related Diseases 31:01 - Early Detection of CJD and Prion Disease 36:37 - Learning About CJD Through Similar Diseases -- Watch more from this conference at: 2015 CJD Foundation Family Conference Playlist: http:/...

    published: 03 Sep 2015
  • Prion Disease and CJD Vaccination Approaches by Thomas Wisniewski

    Discussing vaccination approaches for Prion Diseases, CJD, and related disorders, Dr. Thomas Wisniewski sheds light on how to solve the dilemmas of Creutzfeldt-Jakob Disease and similar disorders. Thomas Wisniewski: Professor of neurology, Personal Chair in Clinical Neurology, University of Edinburgh; consultant neurologist, Western General Hospital, Founder and Former director, National CJD Surveillance Unit, United Kingdom, Edinburgh, Scotland. 0:00 - Introduction 0:31 - Conformational Disorders 0:59 - Prion Disease Active Vaccination 2:05 - Salmonella Vaccines for Prion Infection 2:54 - Chronic Wasting Disease (CWD) 5:09 - Saliva Sampling and Tonsillar Biopsy 7:37 - Conclusions of Prion Disease Vaccination 8:01 - Immunotherapeutic Approches for AD 16:12 - Conclusions of Monoclonal Ab...

    published: 03 Sep 2015
developed with YouTube
Report on New Variant CJD in Eastern England (November 2009)

Report on New Variant CJD in Eastern England (November 2009)

  • Order:
  • Duration: 8:21
  • Updated: 05 Jan 2010
  • views: 2380
videos
Click herehttp://www.foodsafetypolicy.com Variant CJD in Eastern England (November 20009) See www.itvlocal.com/
https://wn.com/Report_On_New_Variant_Cjd_In_Eastern_England_(November_2009)
Human 'Mad Cow Disease' (CJD) News Report No. 2

Human 'Mad Cow Disease' (CJD) News Report No. 2

  • Order:
  • Duration: 3:28
  • Updated: 01 Oct 2013
  • views: 19828
videos
Click herehttp://www.foodsafetypolicy.com On December 2007, at just 24 years of age, Andy Black died after suffering from the human form of mad cow's disease vCJD (variant Creutzfeldt-Jakob Disease). Andy worked in the media producing/researching programmes for talkSPORT Radio, BBC, and ITV. During his terrible last days and at his request Christine Lord made it her mission to find out "Who killed my son?" and with the BBC, she produced a documentary exposing the key players at the centre of the BSE crisis whose actions and decisions led to his untimely and avoidable death. The Documentary is at http://www.youtube.com/watch?v=MAJTr6Nxxa0 Christine Lord, as Andy's mum and a freelance journalist continues to research the scandal - and its links between school meals, (state and independent), baby food, vaccines and medicines. *** Creutzfeldt--Jakob disease or CJD is a degenerative neurological disorder (brain disease) that is incurable and invariably fatal. CJD is at times called a human form of mad cow disease, given that bovine spongiform encephalopathy is believed to be the cause of variant Creutzfeldt--Jakob disease in humans. CJD is the most common among the types of transmissible spongiform encephalopathy found in humans. In CJD, the brain tissue develops holes and takes on a sponge-like texture. This is due to a type of infectious protein called a prion. Prions are misfolded proteins which replicate by converting their properly folded counterparts. The first symptom of CJD is rapidly progressive dementia, leading to memory loss, personality changes and hallucinations. This is accompanied by physical problems such as speech impairment, jerky movements (myoclonus), balance and coordination dysfunction (ataxia), changes in gait, rigid posture, and seizures. The duration of the disease varies greatly, but sporadic (non-inherited) CJD can be fatal within months or even weeks (Johnson, 1998). In some people, the symptoms can continue for years. In most patients, these symptoms are followed by involuntary movements and the appearance of an atypical diagnostic electroencephalogram tracing. Most victims die 6 months after initial symptoms appear, often of pneumonia due to impaired coughing reflexes. About 15% of patients survive 2 or more years. The symptoms of CJD are caused by the progressive death of the brain's nerve cells, which is associated with the build-up of abnormal prion proteins forming amyloids. When brain tissue from a CJD patient is examined under a microscope, many tiny holes can be seen where whole areas of nerve cells have died. The word "spongiform" in "transmissible spongiform encephalopathies" refers to the sponge-like appearance of the brain tissue.
https://wn.com/Human_'Mad_Cow_Disease'_(Cjd)_News_Report_No._2
Human 'Mad Cow Disease' (CJD) News Report

Human 'Mad Cow Disease' (CJD) News Report

  • Order:
  • Duration: 3:17
  • Updated: 29 Nov 2008
  • views: 29550
videos
Click herehttp://www.foodsafetypolicy.com *** On 16th December 2007, at just 24 years of age, Andy Black died after suffering from the human form of mad cow's disease vCJD (variant Creutzfeldt-Jakob Disease). Andy worked in the media producing/researching programmes for talkSPORT Radio, BBC, and ITV. During his terrible last days and at his request Christine Lord made it her mission to find out "Who killed my son?" and with the BBC, she produced a documentary exposing the key players at the centre of the BSE crisis whose actions and decisions led to his untimely and avoidable death. The Documentary is at http://www.youtube.com/watch?v=MAJTr6Nxxa0 Christine Lord, as Andy's mum and a freelance journalist continues to research the scandal - and its links between school meals, (state and independent), baby food, vaccines and medicines. *** Creutzfeldt--Jakob disease or CJD is a degenerative neurological disorder (brain disease) that is incurable and invariably fatal. CJD is at times called a human form of mad cow disease, given that bovine spongiform encephalopathy is believed to be the cause of variant Creutzfeldt--Jakob disease in humans. CJD is the most common among the types of transmissible spongiform encephalopathy found in humans. In CJD, the brain tissue develops holes and takes on a sponge-like texture. This is due to a type of infectious protein called a prion. Prions are misfolded proteins which replicate by converting their properly folded counterparts. The first symptom of CJD is rapidly progressive dementia, leading to memory loss, personality changes and hallucinations. This is accompanied by physical problems such as speech impairment, jerky movements (myoclonus), balance and coordination dysfunction (ataxia), changes in gait, rigid posture, and seizures. The duration of the disease varies greatly, but sporadic (non-inherited) CJD can be fatal within months or even weeks (Johnson, 1998). In some people, the symptoms can continue for years. In most patients, these symptoms are followed by involuntary movements and the appearance of an atypical diagnostic electroencephalogram tracing. Most victims die 6 months after initial symptoms appear, often of pneumonia due to impaired coughing reflexes. About 15% of patients survive 2 or more years. The symptoms of CJD are caused by the progressive death of the brain's nerve cells, which is associated with the build-up of abnormal prion proteins forming amyloids. When brain tissue from a CJD patient is examined under a microscope, many tiny holes can be seen where whole areas of nerve cells have died. The word "spongiform" in "transmissible spongiform encephalopathies" refers to the sponge-like appearance of the brain tissue.
https://wn.com/Human_'Mad_Cow_Disease'_(Cjd)_News_Report
Report on UK variant CJD in a second genetic type (2008)

Report on UK variant CJD in a second genetic type (2008)

  • Order:
  • Duration: 6:40
  • Updated: 02 Jul 2010
  • views: 655
videos
Click herehttp://www.foodsafetypolicy.com/comment-variant-cjd-in-second-genetic-type to find out more.
https://wn.com/Report_On_UK_Variant_Cjd_In_A_Second_Genetic_Type_(2008)
Variant CJD and Hepatitis C Victims - 27th October 2000

Variant CJD and Hepatitis C Victims - 27th October 2000

  • Order:
  • Duration: 2:34
  • Updated: 28 Jan 2011
  • views: 407
videos
Variant CJD and Hepatitis C Victims - 27th October 2000 On 26th October 2000, the official report on how the BSE scandal happened was released - now comes the battle over the level of compensation - it could range from £50,000 to a quarter of a million. Lawyers and families of those who have died or are dying of the human form of BSE, vCJD, will meet Government officials on Wednesday 1st November 2000. Today the victims of another medical disaster - the thousands of Haemophiliacs who've contracted Hepatitis C, have renewed their demands for compensation.
https://wn.com/Variant_Cjd_And_Hepatitis_C_Victims_27Th_October_2000
Confronting CJD & other Prion Disoders

Confronting CJD & other Prion Disoders

  • Order:
  • Duration: 59:52
  • Updated: 08 Nov 2013
  • views: 43833
videos
For more information, please visit us at http://www.cjdfoundation.org
https://wn.com/Confronting_Cjd_Other_Prion_Disoders
Creutzfeldt-Jakob disease (CJD)

Creutzfeldt-Jakob disease (CJD)

  • Order:
  • Duration: 2:01
  • Updated: 21 Aug 2008
  • views: 384880
videos
Video of a patient suffering from Creutzfeldt-Jakob disease (CJD). For Doctors - Visit http://doctorshangout.com/video/video/show?id=2002836%3AVideo%3A92991 For Patients - Join http://www.patient.org.in - It is a health based social network of people sharing their disease experiences, treatment options, knowledge and giving support to other people suffering from similar health problems.
https://wn.com/Creutzfeldt_Jakob_Disease_(Cjd)
Are we moving closer to treating CJD?

Are we moving closer to treating CJD?

  • Order:
  • Duration: 3:11
  • Updated: 24 Jun 2013
  • views: 3862
videos
Until now there has been no cure and those afflicted are guaranteed a slow and painful death. But now scientists have announced that they have made a step towards finding a treatment for Creutzveldt Jacob disease - CJD.
https://wn.com/Are_We_Moving_Closer_To_Treating_Cjd
CJD Brain Killer Documentary

CJD Brain Killer Documentary

  • Order:
  • Duration: 8:22
  • Updated: 04 Jul 2008
  • views: 136895
videos
WTHR from Indianpolis aired this documentary in the Fall of 2006. My brother was Zane Mingus.
https://wn.com/Cjd_Brain_Killer_Documentary
Cure CJD: Julie's Story

Cure CJD: Julie's Story

  • Order:
  • Duration: 5:15
  • Updated: 26 Apr 2017
  • views: 1591
videos
Creutzfeldt-Jakub Disease, or CJD, is probably something that you've never heard of. But with a mortality rate of 100%, perhaps you should. A rare, degenerative brain condition, CJD is only diagnosed around 100 times a year in the UK. Without a cure, those suffering the disease are usually given just 12 months to live. Julie Robinson was diagnosed with CJD in October 2016, the same month that she was given the all clear from breast cancer. Doctors have given her 12 months to 5 years to live. What makes this even more harrowing, is that Julie has contracted the 'inherited' form of CJD, meaning that her children, Jamie and Jemma, and her young grandchildren are at risk of being diagnosed with the disease. This video features Julie, her husband John, and some of her closest friends, discussing the impact of CJD on their lives. Julie's husband, a firefighter at Buckingham Fire Station, is one of a number of current and former colleagues, and family members who are aiming to raise £25,000 for the Cure CJD Campaign by completing a series of fundraising events, culminating in an endurance kayak - 80 miles in three days from Buckingham to Huntingdon on the River Great Ouse. Please spend a few minutes to watch the video and then share to raise awareness of this horrible disease and hopefully help the Cure CJD Campaign find a cure. To donate, please visit: www.justgiving.com/fundraising/Buckingham-Huntingdon-Kayak
https://wn.com/Cure_Cjd_Julie's_Story
TRAILER #1 FOR "ONE IN A MILLION: A CJD DOCUMENTARY"

TRAILER #1 FOR "ONE IN A MILLION: A CJD DOCUMENTARY"

  • Order:
  • Duration: 2:15
  • Updated: 10 Jul 2013
  • views: 25293
videos
I am making a documentary about Creutzfeld-Jakob Disease. I am shooting and editing it myself while I am getting tested for the genetic mutation that killed my grandfather and just this year - my mother. Along the way, I will meet the doctors and researchers working to find a cure for this untreatable, 100% fatal brain disease. I will also meet other families that have suffered the painful loss of their loved ones to this cruel disease.
https://wn.com/Trailer_1_For_One_In_A_Million_A_Cjd_Documentary
C.J.D 2016 Montpellier

C.J.D 2016 Montpellier

  • Order:
  • Duration: 1:59
  • Updated: 17 Jan 2017
  • views: 179
videos
Aperçu de la soirée prestige du centre des jeunes dirigeants de Montpellier.
https://wn.com/C.J.D_2016_Montpellier
Creutzfeldt-Jakob Disease Report from 2010

Creutzfeldt-Jakob Disease Report from 2010

  • Order:
  • Duration: 1:35
  • Updated: 12 Sep 2011
  • views: 3167
videos
See http://www.foodsafetypolicy.com CJD Research Campaign from October 2011 Two decades on since BSE or mad cow disease hit the headlines, a father of a victim of its form in humans, new variant CJD, wants the government to maintain research into the degenerative condition. Recent research suggests up to 1 in 1000 people could still be affected. *** Creutzfeldt--Jakob disease or CJD is a degenerative neurological disorder (brain disease) that is incurable and invariably fatal.CJD is at times called a human form of mad cow disease, given that bovine spongiform encephalopathy is believed to be the cause of variant Creutzfeldt--Jakob disease in humans. CJD is the most common among the types of transmissible spongiform encephalopathy found in humans. In CJD, the brain tissue develops holes and takes on a sponge-like texture. This is due to a type of infectious protein called a prion. Prions are misfolded proteins which replicate by converting their properly folded counterparts The first symptom of CJD is rapidly progressive dementia, leading to memory loss, personality changes and hallucinations. This is accompanied by physical problems such as speech impairment, jerky movements (myoclonus), balance and coordination dysfunction (ataxia), changes in gait, rigid posture, and seizures. The duration of the disease varies greatly, but sporadic (non-inherited) CJD can be fatal within months or even weeks (Johnson, 1998). In some people, the symptoms can continue for years. In most patients, these symptoms are followed by involuntary movements and the appearance of an atypical diagnostic electroencephalogram tracing. Most victims die 6 months after initial symptoms appear, often of pneumonia due to impaired coughing reflexes. About 15% of patients survive 2 or more years. The symptoms of CJD are caused by the progressive death of the brain's nerve cells, which is associated with the build-up of abnormal prion proteins forming amyloids. When brain tissue from a CJD patient is examined under a microscope, many tiny holes can be seen where whole areas of nerve cells have died. The word "spongiform" in "transmissible spongiform encephalopathies" refers to the sponge-like appearance of the brain tissue. Cause Transmissible spongiform encephalopathy diseases are caused by prions. The diseases are thus sometimes called prion diseases. Other prion diseases include Gerstmann--Sträussler--Scheinker syndrome (GSS), fatal familial insomnia (FFI) and kuru in humans, as well as bovine spongiform encephalopathy (BSE, commonly known as mad cow disease) in cattle, chronic wasting disease (CWD) in elk and deer, and scrapie in sheep. Alpers' syndrome in infants is also thought to be a transmissible spongiform encephalopathy caused by a prion.
https://wn.com/Creutzfeldt_Jakob_Disease_Report_From_2010
CJD, A Personal Story

CJD, A Personal Story

  • Order:
  • Duration: 3:15
  • Updated: 17 Feb 2010
  • views: 1755
videos
Steve, a California physician, whose wife spontaneously developed CJD, shares his experiences as a husband and caregiver. CJD is a rapidly progressive dementia whose study may yield important insights about other, more prevalent dementias. We thank Steve and his children for sharing their stories. Their contribution has contributed to a growing awareness about CJD. This film has been entered into the 2010 Neuro Film Festival from the American Academy of Neurology Foundation at www.neurofilmfestival.com. Let's put our brains together and support brain research!
https://wn.com/Cjd,_A_Personal_Story
Prion Disease and CJD Vaccination Approaches by Thomas Wisniewski

Prion Disease and CJD Vaccination Approaches by Thomas Wisniewski

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  • Duration: 17:48
  • Updated: 03 Sep 2015
  • views: 675
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Discussing vaccination approaches for Prion Diseases, CJD, and related disorders, Dr. Thomas Wisniewski sheds light on how to solve the dilemmas of Creutzfeldt-Jakob Disease and similar disorders. Thomas Wisniewski: Professor of neurology, Personal Chair in Clinical Neurology, University of Edinburgh; consultant neurologist, Western General Hospital, Founder and Former director, National CJD Surveillance Unit, United Kingdom, Edinburgh, Scotland. 0:00 - Introduction 0:31 - Conformational Disorders 0:59 - Prion Disease Active Vaccination 2:05 - Salmonella Vaccines for Prion Infection 2:54 - Chronic Wasting Disease (CWD) 5:09 - Saliva Sampling and Tonsillar Biopsy 7:37 - Conclusions of Prion Disease Vaccination 8:01 - Immunotherapeutic Approches for AD 16:12 - Conclusions of Monoclonal Ab Experiments 16:38 - Conformational Disorders (Alzheimer's Disease) Therapy Watch more from this conference at: 2015 CJD Foundation Family Conference Playlist: http://bit.ly/cjd-2015 Individual Presentations: Byron Caughey - Detecting Prions: http://bit.ly/cjd-caughey Glenn Telling - Transgenic Mouse Modeling: http://bit.ly/cjd-telling Thomas Wisniewski - Vaccination Approaches: http://bit.ly/cjd-wisniewski Q&A with Caughey, Telling, Wisniewski, Will: http://bit.ly/cjd-qa1 Jean-Phillipe Deslys: Human Mini-Brains: http://bit.ly/cjd-deslys Julia Moreno: Gerstamann-Straussler Scheinker Syndrome: http://bit.ly/cjd-moreno Chrsitina Sigurdson - Selective Cell Vulnerability: http://bit.ly/cjd-sigurdson Q&A with Deslys, Moreno, Sigurdson, and Knight: http://bit.ly/cjd-qa2 Emiliano Biasini - Pharmacological Chaperones http://bit.ly/cjd-biasini CJD Foundation Website: http://www.CJDFoundation.org Subscribe: https://goo.gl/hRMXAp -- "Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. They first came to public attention in the mid 1980s in the form of the BSE epidemic in the United Kingdom. BSE (bovine spongiform encephalopathy) is a prion disease in cattle. Tissue from infected animals may have contaminated cattle feed, leading to the silent spread of the BSE epidemic. There is also a theory that BSE came from feed contaminated with scrapie, the long established sheep prion disease. Inevitably, concern over whether BSE could pass to humans mounted. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per year. In the United States this translates to 250-300 new cases per year. It is well known that CJD is very difficult to diagnose leading to speculation that the one case per million report may be incorrect. Most of the cases are "classical" or "sporadic" CJD (sCJD), occurring for no, as yet, known reason. The sporadic form accounts for approximately 85% of the cases, the familial form approximately 15%. There have also been a few cases which have occurred from contamination via medical procedures; this type is known as iatrogenic or Acquired CJD. Finally over the last few years, another type of Acquired CJD called variant (vCJD) has been identified in young people. CJD has been linked to ingestion of beef tainted with BSE (bovine spongiform encephalopathy), most cases have occurred in the United Kingdom." -- Information Provided by: http://www.cjdfoundation.org/about-cjd
https://wn.com/Prion_Disease_And_Cjd_Vaccination_Approaches_By_Thomas_Wisniewski
A Matter of Time - living with familial CJD

A Matter of Time - living with familial CJD

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  • Duration: 3:59
  • Updated: 13 Feb 2017
  • views: 1432
videos
https://wn.com/A_Matter_Of_Time_Living_With_Familial_Cjd
Blood Test Breakthrough for Variant CJD - 13th January 2012

Blood Test Breakthrough for Variant CJD - 13th January 2012

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  • Duration: 5:58
  • Updated: 14 Jan 2012
  • views: 3067
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Friday 13th January 2012 - Victoria Macdonald - Heath & Social Care Correspondent Christine Lord's website is www.justice4andy.com A blood test for variant CJD is for the first time being offered to patients from around the UK and some from abroad who are suspected of having what was once known as mad cow disease. A notification has been sent to neurologists around the country from the NHS National Prion Clinic and the Medical Research Council's Prion Unit saying that the blood test is now available. Between five and 10 samples a week are now being sent in from here and other countries where there have been cases of vCJD. Professor John Collinge, who has been part of the team developing the blood test, said that so far the test had not produced any false positive results - that is, where a test shows there is infection when there is not. This is a significant step forward in the fight against the disease. Until now the only way of confirming the diagnosis has been through tonsil biopsies during life or after the patient has died and brain samples can be taken. Funding from the Medical Research Council has meant the team has now been able to begin a crucial new phase in assessing the blood test. This involves testing 5,000 anonymous samples from the US, supplied from the American Red Cross. America has low levels of exposure to BSE and the tests will enable the scientists to assess the false positive rate. Prof Collinge said if they find there are a significant number of false positives then "it will be back to the drawing board." If, on the other hand, the test works, then the next step will be to screen 50,000 anonymous UK blood donors which would allow the first accurate assessment of how many people in this country are carrying the disease. Recent studies from tonsil samples show that possibly one in 4,000 people in the UK or 15,000 in total may be infected with the disease, although some tests have put the numbers slightly higher. The latest figures from the Health Protection Agency show that there have so far been 176 definite or probable cases of vCJD from when it was first detected in humans in 1995 until the end of 2011. Variant CJD is a human form of bovine spongiform encephalopathy (BSE) which first emerged in Britain in 1986 as a result of beef offal being fed to cattle. The prions which are responsible for BSE and vCJD were found in the brains, spinal cords and spleens of cows. When the meat was mechanically recovered, and turned into the likes of hamburgers and baby food, the prions entered the human chain. Variant CJD is a cruel disease which causes a form of dementia, affecting both the brain and nervous system. It has a long incubation period and mainly affects young people. The majority of deaths have been in those in their 20s, although there have been exceptions. The development of a possible blood test was announced last February in a scientific paper published in The Lancet. Permission has now been given by UCLH, the hospital trust to which Prof Collinge and his team are attached, to start a clinical evaluation in patients in whom a diagnosis of vCJD is suspected. Currently blood undergoes leukodepletion which involves the removal of the white blood cells. But this does not remove all the prions and there have been several cases of people infected with vCJD after receiving blood products. There have also been cases of people being infected through the use of surgical instruments. It is understood that a 50-year-old woman died from vCJD within the past few weeks after she received a blood transfusion in 2002 - four years after leukodepletion was introduced. "In principle, it may allow us to find how many people in the population are infected so we can target risk management strategies and ensure the safety of our blood supply," he said. "It could also enable us to make an earlier diagnosis and as treatments become available it is going to be desperately important to get to patients early before there is extensive damage to the brain." Christine Lord, whose son Andy died in 2007 from vCJD, told Channel 4 News that the sad thing was that many people thought this disease had gone away. "The importance of a blood test means we would protect people and prevent future deaths," Ms Lord said. "Since my son's death I have visited many more young men and women who are dying with vCJD. It continues to kill on a regular basis. My concern as a Mum who has lost her only son is that no other Mum, Dad or family will go through this. The pain is absolutely unbelievable." Frank Dobson, who was the Health Secretary who introduced leukodepletion, urged the government to provide any necessary future funding.
https://wn.com/Blood_Test_Breakthrough_For_Variant_Cjd_13Th_January_2012
CJD Disease -- What it Really is and How Someone Gets It!

CJD Disease -- What it Really is and How Someone Gets It!

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  • Duration: 5:31
  • Updated: 13 May 2014
  • views: 9730
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http://utahtexans.com/ Click on the link above for a free video guide to dietary supplements and herbal remedies! In this video I'm going to be answering the question what is CJD disease, and I will be giving you some ideas on how not to get it. CJD is the short and easy way of saying Critzfelt Yacob Disease, and it's is a brain disorder that leads to memory problems, and eventually death. Usually CJD Disease affects the elderly, this includes a person over the age of 60 and 9 out of 10 people that get diagnosed with it die within about a year. One of the good news about this disease is that it's very rare. In fact only around 300 cases are seen every year in the United States. Unfortunately because this ailment is so hard to diagnose there may be many more cases that do take place. The reason it's hard to diagnose is because symptoms are very similar to dementia, and this includes things like memory problems, lack of coordination, mood swings, fatigue and some abnormal behavior. As the illness grows someone may encounter problems with speech, hearing, vision, muscle paralysis and eventually a coma. At this point you may be wondering how in the heck someone gets this CJD disease, and how can we avoid it? The smartest people in the medical community used to think that a virus caused this disease, but now we know it's from an infectious protein known as prion. This is why another name for this ailment is prion disease. What takes place is that healthy brain cells breaks down into this damaged prion protein that the body can't use. Under the microscope the areas of the brain almost look like a sponge or Swiss cheese. One way someone gets CJD is through eating contaminated meat that has mad cow disease because it also has this prion protein. Another way someone can get CJD is by inheriting it. This means someone is born with it and was dealt an unlucky hand with life. Sadly any other way that causes this health illness isn't known. That being said CJD isn't contagious and that means that you can't get it like the common cold or flu virus. You can reduce the risk of this illness by not eating contaminated meat. Another great idea that could possibly help would be to take an omega 3 fish oil supplement. In your brain there are all these neurons that send messages back and forth. The protective layer on these neurons are made of omega 3 and over time this protective layer can weaker leading to problems with memory, learning and behavior. This is why various studies show that consuming more omega 3 can help someone with a variety of brain activities. The best way really to get omega 3 is through a dietary supplement because seafood usually has harmful metals and contaminations. Of course not all supplements are the same and to help you with shopping I've created a guide on this topic. This video guide goes over what to look for in a dietary supplement as well as herbal remedies. It also talks about the roles of government agencies that product consumers and much more. Oh, and it's completely free and you can learn more by clicking on the link http://texasvitamins.com/go/youtube.html.
https://wn.com/Cjd_Disease_What_It_Really_Is_And_How_Someone_Gets_It
CJD Creutzfeldt-Jakob Disease - Mayo Clinic

CJD Creutzfeldt-Jakob Disease - Mayo Clinic

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  • Duration: 2:15
  • Updated: 05 Sep 2012
  • views: 55249
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There is a disease that strikes just 300 Americans each year. Yet, it is a nightmare that some have described as a lightening quick version of Alzheimer's & Parkinson's diseases combined. For families losing loved ones, research holds the only hope. Here's Dennis Douda for Medical Edge.
https://wn.com/Cjd_Creutzfeldt_Jakob_Disease_Mayo_Clinic
Creutzfeldt-Jakob Disease (CJD) Q&A | Byron Caughey, Glenn Telling, Thomas Wisniewski, Robert Will

Creutzfeldt-Jakob Disease (CJD) Q&A | Byron Caughey, Glenn Telling, Thomas Wisniewski, Robert Will

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  • Duration: 37:33
  • Updated: 03 Sep 2015
  • views: 810
videos
During the Creutzfeldt-Jakob Disease (CJD) question and answer discussion board, leading experts on Prion Disease and similar disorders comment on what CJD is, discuss vaccination approaches to Prion Disease and talk about other aspects of Creutzfeldt-Jakob disease. Prion Disease and CJD Discussion Board: Byron Caughey, Glenn Telling, Thomas Wisniewski, and Robert Will 0:34 - Testing CJD Disease Results 1:31 - Creutzfeldt-Jakob Disease Test Turnout Time 5:00 - CJD Infection Analysis 8:42 - Pre-CJD Symptoms 14:11 - CWD Prevention 22:35 - CWD Immunity 27:24 - How to Detect CWD and Related Diseases 31:01 - Early Detection of CJD and Prion Disease 36:37 - Learning About CJD Through Similar Diseases -- Watch more from this conference at: 2015 CJD Foundation Family Conference Playlist: http://bit.ly/cjd-2015 Individual Presentations: Byron Caughey - Detecting Prions: http://bit.ly/cjd-caughey Glenn Telling - Transgenic Mouse Modeling: http://bit.ly/cjd-telling Thomas Wisniewski - Vaccination Approaches: http://bit.ly/cjd-wisniewski Q&A with Caughey, Telling, Wisniewski, Will: http://bit.ly/cjd-qa1 Jean-Phillipe Deslys: Human Mini-Brains: http://bit.ly/cjd-deslys Julia Moreno: Gerstamann-Straussler Scheinker Syndrome: http://bit.ly/cjd-moreno Chrsitina Sigurdson - Selective Cell Vulnerability: http://bit.ly/cjd-sigurdson Q&A with Deslys, Moreno, Sigurdson, and Knight: http://bit.ly/cjd-qa2 Emiliano Biasini - Pharmacological Chaperones http://bit.ly/cjd-biasini CJD Foundation Website: http://www.CJDFoundation.org Subscribe: https://goo.gl/hRMXAp -- "Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. They first came to public attention in the mid 1980s in the form of the BSE epidemic in the United Kingdom. BSE (bovine spongiform encephalopathy) is a prion disease in cattle. Tissue from infected animals may have contaminated cattle feed, leading to the silent spread of the BSE epidemic. There is also a theory that BSE came from feed contaminated with scrapie, the long established sheep prion disease. Inevitably, concern over whether BSE could pass to humans mounted. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per year. In the United States this translates to 250-300 new cases per year. It is well known that CJD is very difficult to diagnose leading to speculation that the one case per million report may be incorrect. Most of the cases are "classical" or "sporadic" CJD (sCJD), occurring for no, as yet, known reason. The sporadic form accounts for approximately 85% of the cases, the familial form approximately 15%. There have also been a few cases which have occurred from contamination via medical procedures; this type is known as iatrogenic or Acquired CJD. Finally over the last few years, another type of Acquired CJD called variant (vCJD) has been identified in young people. CJD has been linked to ingestion of beef tainted with BSE (bovine spongiform encephalopathy), most cases have occurred in the United Kingdom." -- Information Provided by: http://www.cjdfoundation.org/about-cjd
https://wn.com/Creutzfeldt_Jakob_Disease_(Cjd)_Q_A_|_Byron_Caughey,_Glenn_Telling,_Thomas_Wisniewski,_Robert_Will
CJD : Film de présentation (version courte)

CJD : Film de présentation (version courte)

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  • Duration: 3:26
  • Updated: 15 Dec 2014
  • views: 1979
videos
https://wn.com/Cjd_Film_De_Présentation_(Version_Courte)
Creutzfeldt Jakob Disease - Hadaya Gelle

Creutzfeldt Jakob Disease - Hadaya Gelle

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  • Duration: 4:36
  • Updated: 13 May 2017
  • views: 2660
videos
Human Diseases Fourth Quarter Project By: Hadaya Gelle Period 6 Transcript: Creutzfeldt-Jakob Disease is a rare, degenerative, fatal brain disorder that affects one in every million. It belongs to the transmissible spongiform encephalopathies (TSEs) family of human and animal diseases. The onset of this disease usually occurs at about 60 years of age and 90% of sufferers usually die within the first year of having the disease. Creutzfeldt-Jakob Disease is broken down into 3 categories: Sporadic, Hereditary, and Acquired. Sporadic CJD is the most common and affects about 80% of the people diagnosed. There aren’t any risk factors that can lead you to have this type. Hereditary CJD affects 5-10% of the people diagnosed and is caused by a genetic mutation. Acquired CJD is the least common type that affects only 1% of the people diagnosed. It is usually caused by exposure of nervous system tissue, including the brain, during a certain medical procedure. Early symptoms of Creutzfeldt-Jakob Disease includes: Rapidly progressive dementia Problems in muscular coordination Changes in personality Impairment of memory, judgement, vision, and thinking Depression and insomnia may occur Severe symptoms of CJD includes: Mental impairment Myoclonus, which is involuntary muscle jerks Blindness Inability to move or speak Coma Development of infections such as pneumonia that can lead to death Symptoms of CJD may be similar to those of Alzheimer’s or Huntington’s Disease, but to accurately confirm the disease, an autopsy needs to be done because CJD causes a unique change to brain tissue CJD is caused by prions, which are harmless proteins found in human body cells, but once they become abnormal, they clump together which leads to neuron loss brain damage that is seen in the disease. The way the brain damage occurs is yet unknown. CJD can also be inherited. Prions can become infectious if mutation occurs in the prion gene or if the prion gene becomes mutated in an egg or sperm cell that will ultimately be passed down to the offspring. CJD cannot be transmitted through the air or casual contact and is not contagious. But the disease can be transmitted by coming into contact with an infected person’s spinal cord fluid or brain tissue. There are cases of people contracting the disease from cornea transplants, dura mater grafts, implantation of unsterilized electrodes in the brain, and injection of contaminated growth hormones from the pituitary gland. The chances of contracting CJD through medical procedures has greatly decreased through the improvement of medicine. At this time, there aren't any diagnostic tests that can diagnose someone with Creutzfeldt-Jakob Disease. However, if a doctor suspects someone of having CJD, they’ll administer tests such as spinal taps and giving the patient an electroencephalogram that will rule out treatable forms of dementia (such as encephalitis and chronic meningitis). CT scans can also rule out brain tumors and signs of stroke. MRI scans of the brain can reveal the pattern of brain degeneration to determine if they’re caused by CJD. Unfortunately, there is no way to treat CJD but current treatment is alleviating symptoms for sufferers by prescribing them opiate drugs and sodium valproate for the myoclonus. Precautions that can be taken to prevent the spread of CJD includes: Covering cuts and abrasions with waterproof dressings Wearing face protection when coming into contact with splashing blood or spinal fluid Disposing clothes that came into contact with a patient Avoid cutting or poking yourself with instruments contaminated with blood Soaking instruments that came into contact with a patient with undiluted chlorine bleach Thanks for watching! If you liked this video leave a like and a quick comment. If you want to see more quality content then subscribe and click the notification bell at the bottom of your screen!
https://wn.com/Creutzfeldt_Jakob_Disease_Hadaya_Gelle
Creutzfeldt-Jakob Disease (CJD) In memory of Davey L. Kock

Creutzfeldt-Jakob Disease (CJD) In memory of Davey L. Kock

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  • Duration: 6:38
  • Updated: 31 Oct 2013
  • views: 20901
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This video provides basic information about Creutzfeldt-Jakob Disease (CJD), a rare, 100% fatal, degenerative brain disease. Davey L Kock passed away on September 25, 2012 from CJD. His family and friends are hosting a fundraiser with a pork loin supper, raffle, silent and live auctions, and a dance on November 16, 2013, which would have been Davey's 55th birthday. We invite you to join us as we raise funds that will go towards a research grant in Davey's name to help find a treatment and cure for CJD as well as provide support for families who currently are and will in the future be affected by this disease. Find out more information about the event here: https://www.facebook.com/events/216186431875888/ If you are unable to attend and would still like to give, you can do so here: http://friendraising.towercare.com/Markslist/campaign/display/profile.do?campaignId=19127 Learn more about CJD and the CJD Foundation here: http://www.cjdfoundation.org/ Thank you for helping us raise awareness for CJD and make steps toward a cure.
https://wn.com/Creutzfeldt_Jakob_Disease_(Cjd)_In_Memory_Of_Davey_L._Kock
Creutzfeldt-Jakob disease, Human Mad Cow Disease, Kuru, Scrapies, CJD, BSE

Creutzfeldt-Jakob disease, Human Mad Cow Disease, Kuru, Scrapies, CJD, BSE

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  • Duration: 52:11
  • Updated: 16 Dec 2016
  • views: 5316
videos
https://wn.com/Creutzfeldt_Jakob_Disease,_Human_Mad_Cow_Disease,_Kuru,_Scrapies,_Cjd,_Bse
Ernie's Story: Creutzfeldt-Jakob Disease

Ernie's Story: Creutzfeldt-Jakob Disease

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  • Duration: 4:49
  • Updated: 02 Mar 2016
  • views: 10870
videos
This film has been entered into the 2016 Neuro Film Festival at NeuroFilmFestival.com. Ernie's Story is a short film focusing on the need for awareness and research for Creutzfeldt-Jakob Disease. A disease that is considered rare and therefore receives little attention or funding for research. Currently there are 7 states in the US that does not mandate CJD as a reportable disease. This not only effects reported cases, it hurts chances for research through autopsies. CJD is a disease that is devastating and has no treatment or cure. Patients on an average live less than a year after initial symptoms. This film focuses on Ernie Donahue that passed away from CJD last year at the young age of 41. A gentle, kind man that received the greatest joy from helping others. We hope that hearing Ernie's story, his legacy for helping others will continue on by creating awareness. We hope that not only will all 50 states join the efforts for research but one day find a cure.
https://wn.com/Ernie's_Story_Creutzfeldt_Jakob_Disease
Prion Disease | Gerstmann-Straussler Scheinker (GSS) Syndrome by Julia Moreno

Prion Disease | Gerstmann-Straussler Scheinker (GSS) Syndrome by Julia Moreno

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  • Duration: 18:12
  • Updated: 03 Sep 2015
  • views: 2200
videos
Discussing the specific Prion Disease, Gerstmann-Straussler Scheinker (GSS) Syndrome, Julia Moreno showcases her studies on the role of Cellular Chaperons, and the Unfolded Protein Response in the Gerstmann-Straussler Scheinker (GSS) Syndrome. 0:30 - Human Prion Disease Types 1:29 - Gerstmann-Straussier Scheinker (GSS) 2:30 - Spontaneous Neurodegenerative Disease in Tg(GSS)mice 4:15 - Mis-folds During Prion Disease 5:57 - Hypothesis 6:15 - Generation of Susceptible (S) and Resistant (R) Cells Study 7:46 - Identification of Differences between S and R Cells 9:07 - PANTHER Analysis 15:27 - Conclusions -- Watch more from this conference at: 2015 CJD Foundation Family Conference Playlist: http://bit.ly/cjd-2015 Individual Presentations: Byron Caughey - Detecting Prions: http://bit.ly/cjd-caughey Glenn Telling - Transgenic Mouse Modeling: http://bit.ly/cjd-telling Thomas Wisniewski - Vaccination Approaches: http://bit.ly/cjd-wisniewski Q&A with Caughey, Telling, Wisniewski, Will: http://bit.ly/cjd-qa1 Jean-Phillipe Deslys: Human Mini-Brains: http://bit.ly/cjd-deslys Julia Moreno: Gerstamann-Straussler Scheinker Syndrome: http://bit.ly/cjd-moreno Chrsitina Sigurdson - Selective Cell Vulnerability: http://bit.ly/cjd-sigurdson Q&A with Deslys, Moreno, Sigurdson, and Knight: http://bit.ly/cjd-qa2 Emiliano Biasini - Pharmacological Chaperones http://bit.ly/cjd-biasini CJD Foundation Website: http://www.CJDFoundation.org Subscribe: https://goo.gl/hRMXAp -- "Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. They first came to public attention in the mid 1980s in the form of the BSE epidemic in the United Kingdom. BSE (bovine spongiform encephalopathy) is a prion disease in cattle. Tissue from infected animals may have contaminated cattle feed, leading to the silent spread of the BSE epidemic. There is also a theory that BSE came from feed contaminated with scrapie, the long established sheep prion disease. Inevitably, concern over whether BSE could pass to humans mounted. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per year. In the United States this translates to 250-300 new cases per year. It is well known that CJD is very difficult to diagnose leading to speculation that the one case per million report may be incorrect. Most of the cases are "classical" or "sporadic" CJD (sCJD), occurring for no, as yet, known reason. The sporadic form accounts for approximately 85% of the cases, the familial form approximately 15%. There have also been a few cases which have occurred from contamination via medical procedures; this type is known as iatrogenic or Acquired CJD. Finally over the last few years, another type of Acquired CJD called variant (vCJD) has been identified in young people. CJD has been linked to ingestion of beef tainted with BSE (bovine spongiform encephalopathy), most cases have occurred in the United Kingdom." -- Information Provided by: http://www.cjdfoundation.org/about-cjd
https://wn.com/Prion_Disease_|_Gerstmann_Straussler_Scheinker_(Gss)_Syndrome_By_Julia_Moreno
Detecting Prions and Diagnosing Prion Diseases by Byron Caughey

Detecting Prions and Diagnosing Prion Diseases by Byron Caughey

  • Order:
  • Duration: 33:54
  • Updated: 25 Aug 2015
  • views: 2584
videos
"Progress in Detecting Prions and Diagnosing Prion Diseases" is lectured at the CJD foundation 2015 conference by Byron Caughey. Discussing Creutzfeldt-Jakob Disease (CJD) and other Prion diseases, Bryon Caughey helps shed some light on these health issues. Byron Caughey is from the Laboratory of Persistent Viral Diseases, NIH/NIAID Rocky Mountain Laboratories, Hamilton, Montana. Caughey discusses the progress being made to diagnose various protein misfolding diseases in living humans. Topics discussed include: prion diseases, transmissible spongiform encephalopathies, chronic wasting disease, neurodegenerative diseases, bank voles, sporadic CJD,familial CJD, scrapie, GSS, fatal familial insomnia, iatrogenic CJD,. dura mater transplant, growth hormone injections, kuru in New Guinea, protozoans, electron micrographs, brain, PrPC, Christina Orru, RT Quic, RT-quic, assay testing, Real-time quaking induced conversion, amyloid structure, Alzheimers, cerebral spinal fluid or CSF, neurosurgery, neurosurgeries, brushing of nasal mucosa, Montana, Luigi Zanusso, nasal vault, diagnostic sensitivity, specificity, sensor molecules, substrates, substrate, bank vole prion, pathological protein, BSE, Bovine spongiform encephalopathy. 0:00 - Introduction 1:12 - Transmissible Spongiform Encephalopathies Diseases 1:49 - Human TSE (prion) diseases 5:54 - How Prions Propagate 11:11 - Detecting Prion Diseases 17:57 - RT-QuiC tests for TSE Prions 29:58 - Diagnosing Prion Disease Conclusion 30:30 - Future Prospects of Detecting Prion Diseases -- Watch more from this conference at: 2015 CJD Foundation Family Conference Playlist: http://bit.ly/cjd-2015 Individual Presentations: Byron Caughey - Detecting Prions: http://bit.ly/cjd-caughey Glenn Telling - Transgenic Mouse Modeling: http://bit.ly/cjd-telling Thomas Wisniewski - Vaccination Approaches: http://bit.ly/cjd-wisniewski Q&A with Caughey, Telling, Wisniewski, Will: http://bit.ly/cjd-qa1 Jean-Phillipe Deslys: Human Mini-Brains: http://bit.ly/cjd-deslys Julia Moreno: Gerstamann-Straussler Scheinker Syndrome: http://bit.ly/cjd-moreno Chrsitina Sigurdson - Selective Cell Vulnerability: http://bit.ly/cjd-sigurdson Q&A with Deslys, Moreno, Sigurdson, and Knight: http://bit.ly/cjd-qa2 Emiliano Biasini - Pharmacological Chaperones http://bit.ly/cjd-biasini CJD Foundation Website: http://www.CJDFoundation.org Subscribe: https://goo.gl/hRMXAp -- "Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. They first came to public attention in the mid 1980s in the form of the BSE epidemic in the United Kingdom. BSE (bovine spongiform encephalopathy) is a prion disease in cattle. Tissue from infected animals may have contaminated cattle feed, leading to the silent spread of the BSE epidemic. There is also a theory that BSE came from feed contaminated with scrapie, the long established sheep prion disease. Inevitably, concern over whether BSE could pass to humans mounted. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per year. In the United States this translates to 250-300 new cases per year. It is well known that CJD is very difficult to diagnose leading to speculation that the one case per million report may be incorrect. Most of the cases are "classical" or "sporadic" CJD (sCJD), occurring for no, as yet, known reason. The sporadic form accounts for approximately 85% of the cases, the familial form approximately 15%. There have also been a few cases which have occurred from contamination via medical procedures; this type is known as iatrogenic or Acquired CJD. Finally over the last few years, another type of Acquired CJD called variant (vCJD) has been identified in young people. CJD has been linked to ingestion of beef tainted with BSE (bovine spongiform encephalopathy), most cases have occurred in the United Kingdom." -- Information Provided by: http://www.cjdfoundation.org/about-cjd
https://wn.com/Detecting_Prions_And_Diagnosing_Prion_Diseases_By_Byron_Caughey
Creutzfeldt-Jakob Disease (CJD) Q&A | Byron Caughey, Glenn Telling, Thomas Wisniewski, Robert Will

Creutzfeldt-Jakob Disease (CJD) Q&A | Byron Caughey, Glenn Telling, Thomas Wisniewski, Robert Will

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  • Duration: 37:33
  • Updated: 03 Sep 2015
  • views: 715
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During the Creutzfeldt-Jakob Disease (CJD) question and answer discussion board, leading experts on Prion Disease and similar disorders comment on what CJD is, discuss vaccination approaches to Prion Disease and talk about other aspects of Creutzfeldt-Jakob disease. Prion Disease and CJD Discussion Board: Byron Caughey, Glenn Telling, Thomas Wisniewski, and Robert Will 0:34 - Testing CJD Disease Results 1:31 - Creutzfeldt-Jakob Disease Test Turnout Time 5:00 - CJD Infection Analysis 8:42 - Pre-CJD Symptoms 14:11 - CWD Prevention 22:35 - CWD Immunity 27:24 - How to Detect CWD and Related Diseases 31:01 - Early Detection of CJD and Prion Disease 36:37 - Learning About CJD Through Similar Diseases -- Watch more from this conference at: 2015 CJD Foundation Family Conference Playlist: http://bit.ly/cjd-2015 Individual Presentations: Byron Caughey - Detecting Prions: http://bit.ly/cjd-caughey Glenn Telling - Transgenic Mouse Modeling: http://bit.ly/cjd-telling Thomas Wisniewski - Vaccination Approaches: http://bit.ly/cjd-wisniewski Q&A with Caughey, Telling, Wisniewski, Will: http://bit.ly/cjd-qa1 Jean-Phillipe Deslys: Human Mini-Brains: http://bit.ly/cjd-deslys Julia Moreno: Gerstamann-Straussler Scheinker Syndrome: http://bit.ly/cjd-moreno Chrsitina Sigurdson - Selective Cell Vulnerability: http://bit.ly/cjd-sigurdson Q&A with Deslys, Moreno, Sigurdson, and Knight: http://bit.ly/cjd-qa2 Emiliano Biasini - Pharmacological Chaperones http://bit.ly/cjd-biasini CJD Foundation Website: http://www.CJDFoundation.org Subscribe: https://goo.gl/hRMXAp -- "Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. They first came to public attention in the mid 1980s in the form of the BSE epidemic in the United Kingdom. BSE (bovine spongiform encephalopathy) is a prion disease in cattle. Tissue from infected animals may have contaminated cattle feed, leading to the silent spread of the BSE epidemic. There is also a theory that BSE came from feed contaminated with scrapie, the long established sheep prion disease. Inevitably, concern over whether BSE could pass to humans mounted. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per year. In the United States this translates to 250-300 new cases per year. It is well known that CJD is very difficult to diagnose leading to speculation that the one case per million report may be incorrect. Most of the cases are "classical" or "sporadic" CJD (sCJD), occurring for no, as yet, known reason. The sporadic form accounts for approximately 85% of the cases, the familial form approximately 15%. There have also been a few cases which have occurred from contamination via medical procedures; this type is known as iatrogenic or Acquired CJD. Finally over the last few years, another type of Acquired CJD called variant (vCJD) has been identified in young people. CJD has been linked to ingestion of beef tainted with BSE (bovine spongiform encephalopathy), most cases have occurred in the United Kingdom." -- Information Provided by: http://www.cjdfoundation.org/about-cjd
https://wn.com/Creutzfeldt_Jakob_Disease_(Cjd)_Q_A_|_Byron_Caughey,_Glenn_Telling,_Thomas_Wisniewski,_Robert_Will
Prion Disease and CJD Vaccination Approaches by Thomas Wisniewski

Prion Disease and CJD Vaccination Approaches by Thomas Wisniewski

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  • Duration: 17:48
  • Updated: 03 Sep 2015
  • views: 545
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Discussing vaccination approaches for Prion Diseases, CJD, and related disorders, Dr. Thomas Wisniewski sheds light on how to solve the dilemmas of Creutzfeldt-Jakob Disease and similar disorders. Thomas Wisniewski: Professor of neurology, Personal Chair in Clinical Neurology, University of Edinburgh; consultant neurologist, Western General Hospital, Founder and Former director, National CJD Surveillance Unit, United Kingdom, Edinburgh, Scotland. 0:00 - Introduction 0:31 - Conformational Disorders 0:59 - Prion Disease Active Vaccination 2:05 - Salmonella Vaccines for Prion Infection 2:54 - Chronic Wasting Disease (CWD) 5:09 - Saliva Sampling and Tonsillar Biopsy 7:37 - Conclusions of Prion Disease Vaccination 8:01 - Immunotherapeutic Approches for AD 16:12 - Conclusions of Monoclonal Ab Experiments 16:38 - Conformational Disorders (Alzheimer's Disease) Therapy Watch more from this conference at: 2015 CJD Foundation Family Conference Playlist: http://bit.ly/cjd-2015 Individual Presentations: Byron Caughey - Detecting Prions: http://bit.ly/cjd-caughey Glenn Telling - Transgenic Mouse Modeling: http://bit.ly/cjd-telling Thomas Wisniewski - Vaccination Approaches: http://bit.ly/cjd-wisniewski Q&A with Caughey, Telling, Wisniewski, Will: http://bit.ly/cjd-qa1 Jean-Phillipe Deslys: Human Mini-Brains: http://bit.ly/cjd-deslys Julia Moreno: Gerstamann-Straussler Scheinker Syndrome: http://bit.ly/cjd-moreno Chrsitina Sigurdson - Selective Cell Vulnerability: http://bit.ly/cjd-sigurdson Q&A with Deslys, Moreno, Sigurdson, and Knight: http://bit.ly/cjd-qa2 Emiliano Biasini - Pharmacological Chaperones http://bit.ly/cjd-biasini CJD Foundation Website: http://www.CJDFoundation.org Subscribe: https://goo.gl/hRMXAp -- "Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. They first came to public attention in the mid 1980s in the form of the BSE epidemic in the United Kingdom. BSE (bovine spongiform encephalopathy) is a prion disease in cattle. Tissue from infected animals may have contaminated cattle feed, leading to the silent spread of the BSE epidemic. There is also a theory that BSE came from feed contaminated with scrapie, the long established sheep prion disease. Inevitably, concern over whether BSE could pass to humans mounted. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per year. In the United States this translates to 250-300 new cases per year. It is well known that CJD is very difficult to diagnose leading to speculation that the one case per million report may be incorrect. Most of the cases are "classical" or "sporadic" CJD (sCJD), occurring for no, as yet, known reason. The sporadic form accounts for approximately 85% of the cases, the familial form approximately 15%. There have also been a few cases which have occurred from contamination via medical procedures; this type is known as iatrogenic or Acquired CJD. Finally over the last few years, another type of Acquired CJD called variant (vCJD) has been identified in young people. CJD has been linked to ingestion of beef tainted with BSE (bovine spongiform encephalopathy), most cases have occurred in the United Kingdom." -- Information Provided by: http://www.cjdfoundation.org/about-cjd
https://wn.com/Prion_Disease_And_Cjd_Vaccination_Approaches_By_Thomas_Wisniewski
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