• Human 'Mad Cow Disease' (CJD) News Report

    Click herehttp://www.foodsafetypolicy.com *** On 16th December 2007, at just 24 years of age, Andy Black died after suffering from the human form of mad cow's disease vCJD (variant Creutzfeldt-Jakob Disease). Andy worked in the media producing/researching programmes for talkSPORT Radio, BBC, and ITV. During his terrible last days and at his request Christine Lord made it her mission to find out "Who killed my son?" and with the BBC, she produced a documentary exposing the key players at the centre of the BSE crisis whose actions and decisions led to his untimely and avoidable death. The Documentary is at http://www.youtube.com/watch?v=MAJTr6Nxxa0 Christine Lord, as Andy's mum and a freelance journalist continues to research the scandal - and its links between school meals, (state...

    published: 29 Nov 2008
  • Report on New Variant CJD in Eastern England (November 2009)

    Click herehttp://www.foodsafetypolicy.com Variant CJD in Eastern England (November 20009) See www.itvlocal.com/

    published: 05 Jan 2010
  • Report on UK variant CJD in a second genetic type (2008)

    Click herehttp://www.foodsafetypolicy.com/comment-variant-cjd-in-second-genetic-type to find out more.

    published: 02 Jul 2010
  • Confronting CJD & other Prion Disoders ★ Medicine & Surgery Documentary

    We always have to keep in mind that a Documentary, after all, can tell lies and it can tell lies because it lays claim to a form of veracity which fiction doesn't. Some of the documentaries are made just to discredit some particular person, party, organization, system etc, but most of them here on TDF are non biased, without prejudice and worth watching.

    published: 01 Mar 2017
  • CJD Creutzfeldt-Jakob Disease - Mayo Clinic

    There is a disease that strikes just 300 Americans each year. Yet, it is a nightmare that some have described as a lightening quick version of Alzheimer's & Parkinson's diseases combined. For families losing loved ones, research holds the only hope. Here's Dennis Douda for Medical Edge.

    published: 05 Sep 2012
  • CJD Brain Killer Documentary

    WTHR from Indianpolis aired this documentary in the Fall of 2006. My brother was Zane Mingus.

    published: 04 Jul 2008
  • Variant CJD and Hepatitis C Victims - 27th October 2000

    Variant CJD and Hepatitis C Victims - 27th October 2000 On 26th October 2000, the official report on how the BSE scandal happened was released - now comes the battle over the level of compensation - it could range from £50,000 to a quarter of a million. Lawyers and families of those who have died or are dying of the human form of BSE, vCJD, will meet Government officials on Wednesday 1st November 2000. Today the victims of another medical disaster - the thousands of Haemophiliacs who've contracted Hepatitis C, have renewed their demands for compensation.

    published: 28 Jan 2011
  • Creutzfeldt-Jakob disease (CJD)

    Video of a patient suffering from Creutzfeldt-Jakob disease (CJD). For Doctors - Visit http://doctorshangout.com/video/video/show?id=2002836%3AVideo%3A92991 For Patients - Join http://www.patient.org.in - It is a health based social network of people sharing their disease experiences, treatment options, knowledge and giving support to other people suffering from similar health problems.

    published: 21 Aug 2008
  • Human 'Mad Cow Disease' (CJD) News Report No. 2

    Click herehttp://www.foodsafetypolicy.com On December 2007, at just 24 years of age, Andy Black died after suffering from the human form of mad cow's disease vCJD (variant Creutzfeldt-Jakob Disease). Andy worked in the media producing/researching programmes for talkSPORT Radio, BBC, and ITV. During his terrible last days and at his request Christine Lord made it her mission to find out "Who killed my son?" and with the BBC, she produced a documentary exposing the key players at the centre of the BSE crisis whose actions and decisions led to his untimely and avoidable death. The Documentary is at http://www.youtube.com/watch?v=MAJTr6Nxxa0 Christine Lord, as Andy's mum and a freelance journalist continues to research the scandal - and its links between school meals, (state and indepen...

    published: 01 Oct 2013
  • 22 BRANDON LONDER DIAGNOSED WITH CJD at 22 told 6 MONTHS OF LIFE LEFT.

    Brandon Londer was born Nov 19th, 1992. Raised in Buffalo Grove Illinois and attended Stevenson High School. From a young age he had a big heart and made everyone smile around him. His favorite hobbies began to be designing cars, constructing cars, making music and hanging out with his friends, family and cousins. He spent a lot of time with his sister Brittany, who is a God sent and will do anything to support Brandon in this journey to happiness. His mother Karen is a strong willed fighter along with his father Gary who makes the whole world laugh. Brandon has so many friends that I wonder how I could be just like him. I look up to him. I will always. As he got older he picked up playing the guitar and is absolutely amazing! He is a huge Cubs fan and always has been even when he moved to...

    published: 15 Dec 2015
  • CJD on the NHS

    It's funny cos it's true. :( http://everythingispointless.blogspot.com/2006/12/cjd-on-nhs.html

    published: 28 Dec 2006
  • Cure CJD: Julie's Story

    Creutzfeldt-Jakub Disease, or CJD, is probably something that you've never heard of. But with a mortality rate of 100%, perhaps you should. A rare, degenerative brain condition, CJD is only diagnosed around 100 times a year in the UK. Without a cure, those suffering the disease are usually given just 12 months to live. Julie Robinson was diagnosed with CJD in October 2016, the same month that she was given the all clear from breast cancer. Doctors have given her 12 months to 5 years to live. What makes this even more harrowing, is that Julie has contracted the 'inherited' form of CJD, meaning that her children, Jamie and Jemma, and her young grandchildren are at risk of being diagnosed with the disease. This video features Julie, her husband John, and some of her closest friends, discuss...

    published: 26 Apr 2017
  • Hyperekplexia as the presenting symptom of Creutzfeldt-Jakob disease

    We describe a patient with hyperekplexia as the initial presenting symptom in sporadic Creutzfeldt-Jakob disease (CJD). We also demonstrate the utility of the sensitive and highly specific new prion protein amplification assay, real-time quaking-induced conversion (RT-QUIC), which amplifies and detects misfolded β-sheet–rich conformers of the prion protein (PrPsc), in expediting a confident clinical diagnosis of CJD in an atypical case. For more, see: http://cp.neurology.org/content/5/6/498.extract

    published: 09 Dec 2015
  • One in a Million: A CJD Documentary

    published: 10 Jun 2014
  • Creutzfeldt-Jakob disease, Human Mad Cow Disease, Kuru, Scrapies, CJD, BSE

    published: 16 Dec 2016
  • A Matter of Time - living with familial CJD

    published: 13 Feb 2017
  • Are we moving closer to treating CJD?

    Until now there has been no cure and those afflicted are guaranteed a slow and painful death. But now scientists have announced that they have made a step towards finding a treatment for Creutzveldt Jacob disease - CJD.

    published: 24 Jun 2013
  • Creutzfeldt-Jakob Disease Report from 2010

    See http://www.foodsafetypolicy.com CJD Research Campaign from October 2011 Two decades on since BSE or mad cow disease hit the headlines, a father of a victim of its form in humans, new variant CJD, wants the government to maintain research into the degenerative condition. Recent research suggests up to 1 in 1000 people could still be affected. *** Creutzfeldt--Jakob disease or CJD is a degenerative neurological disorder (brain disease) that is incurable and invariably fatal.CJD is at times called a human form of mad cow disease, given that bovine spongiform encephalopathy is believed to be the cause of variant Creutzfeldt--Jakob disease in humans. CJD is the most common among the types of transmissible spongiform encephalopathy found in humans. In CJD, the brain tissue develops hol...

    published: 12 Sep 2011
  • Blood Test Breakthrough for Variant CJD - 13th January 2012

    Friday 13th January 2012 - Victoria Macdonald - Heath & Social Care Correspondent Christine Lord's website is www.justice4andy.com A blood test for variant CJD is for the first time being offered to patients from around the UK and some from abroad who are suspected of having what was once known as mad cow disease. A notification has been sent to neurologists around the country from the NHS National Prion Clinic and the Medical Research Council's Prion Unit saying that the blood test is now available. Between five and 10 samples a week are now being sent in from here and other countries where there have been cases of vCJD. Professor John Collinge, who has been part of the team developing the blood test, said that so far the test had not produced any false positive results - that...

    published: 14 Jan 2012
  • Prion Disease and CJD Vaccination Approaches by Thomas Wisniewski

    Discussing vaccination approaches for Prion Diseases, CJD, and related disorders, Dr. Thomas Wisniewski sheds light on how to solve the dilemmas of Creutzfeldt-Jakob Disease and similar disorders. Thomas Wisniewski: Professor of neurology, Personal Chair in Clinical Neurology, University of Edinburgh; consultant neurologist, Western General Hospital, Founder and Former director, National CJD Surveillance Unit, United Kingdom, Edinburgh, Scotland. 0:00 - Introduction 0:31 - Conformational Disorders 0:59 - Prion Disease Active Vaccination 2:05 - Salmonella Vaccines for Prion Infection 2:54 - Chronic Wasting Disease (CWD) 5:09 - Saliva Sampling and Tonsillar Biopsy 7:37 - Conclusions of Prion Disease Vaccination 8:01 - Immunotherapeutic Approches for AD 16:12 - Conclusions of Monoclonal Ab...

    published: 03 Sep 2015
  • CJD- Looking For Me (Official Video)

    You can keep up with CJD, for new music, and upcoming shows on the following social media outlets!! (Facebook) https://www.facebook.com/CjDunx (Instagram) @official__CJD & @iamcjdunxx (Twitter) https://twitter.com/dunxvskwad (Sound Cloud) https://m.soundcloud.com/officialcjd Recorded and mastered by: Instagram @ tc.el.control.total Twitter : @ elcontroltotal Soundcloud.com/tcnmi Facebook.com/tcnmi Directed / Filmed / Edited by: Cesar Loza Instagram: @mcloza89

    published: 12 Aug 2016
  • How might antibody treatment work for Creutzfeldt-Jakob disease

    Creutzfeldt-Jakob disease (CJD) is a fatal brain condition with about 100 new cases in the UK every year. There is currently no cure but every day scientists and doctors are getting closer to finding a treatment. This video explains how a novel antibody treatment might work. The development of this antibody treatment is supported by the Cure CJD Campaign. For further information on the Cure CJD Campaign, please see: http://www.curecjd.org/ To donate to the Cure CJD Campaign, please visit: https://www.justgiving.com/cure-cjd

    published: 04 Oct 2016
  • TRAILER #1 FOR "ONE IN A MILLION: A CJD DOCUMENTARY"

    I am making a documentary about Creutzfeld-Jakob Disease. I am shooting and editing it myself while I am getting tested for the genetic mutation that killed my grandfather and just this year - my mother. Along the way, I will meet the doctors and researchers working to find a cure for this untreatable, 100% fatal brain disease. I will also meet other families that have suffered the painful loss of their loved ones to this cruel disease.

    published: 10 Jul 2013
  • Creutzfeldt-Jakob Disease (CJD) Q&A | Byron Caughey, Glenn Telling, Thomas Wisniewski, Robert Will

    During the Creutzfeldt-Jakob Disease (CJD) question and answer discussion board, leading experts on Prion Disease and similar disorders comment on what CJD is, discuss vaccination approaches to Prion Disease and talk about other aspects of Creutzfeldt-Jakob disease. Prion Disease and CJD Discussion Board: Byron Caughey, Glenn Telling, Thomas Wisniewski, and Robert Will 0:34 - Testing CJD Disease Results 1:31 - Creutzfeldt-Jakob Disease Test Turnout Time 5:00 - CJD Infection Analysis 8:42 - Pre-CJD Symptoms 14:11 - CWD Prevention 22:35 - CWD Immunity 27:24 - How to Detect CWD and Related Diseases 31:01 - Early Detection of CJD and Prion Disease 36:37 - Learning About CJD Through Similar Diseases -- Watch more from this conference at: 2015 CJD Foundation Family Conference Playlist: http:/...

    published: 03 Sep 2015
Human 'Mad Cow Disease' (CJD) News Report

Human 'Mad Cow Disease' (CJD) News Report

  • Order:
  • Duration: 3:17
  • Updated: 29 Nov 2008
  • views: 29386
videos
Click herehttp://www.foodsafetypolicy.com *** On 16th December 2007, at just 24 years of age, Andy Black died after suffering from the human form of mad cow's disease vCJD (variant Creutzfeldt-Jakob Disease). Andy worked in the media producing/researching programmes for talkSPORT Radio, BBC, and ITV. During his terrible last days and at his request Christine Lord made it her mission to find out "Who killed my son?" and with the BBC, she produced a documentary exposing the key players at the centre of the BSE crisis whose actions and decisions led to his untimely and avoidable death. The Documentary is at http://www.youtube.com/watch?v=MAJTr6Nxxa0 Christine Lord, as Andy's mum and a freelance journalist continues to research the scandal - and its links between school meals, (state and independent), baby food, vaccines and medicines. *** Creutzfeldt--Jakob disease or CJD is a degenerative neurological disorder (brain disease) that is incurable and invariably fatal. CJD is at times called a human form of mad cow disease, given that bovine spongiform encephalopathy is believed to be the cause of variant Creutzfeldt--Jakob disease in humans. CJD is the most common among the types of transmissible spongiform encephalopathy found in humans. In CJD, the brain tissue develops holes and takes on a sponge-like texture. This is due to a type of infectious protein called a prion. Prions are misfolded proteins which replicate by converting their properly folded counterparts. The first symptom of CJD is rapidly progressive dementia, leading to memory loss, personality changes and hallucinations. This is accompanied by physical problems such as speech impairment, jerky movements (myoclonus), balance and coordination dysfunction (ataxia), changes in gait, rigid posture, and seizures. The duration of the disease varies greatly, but sporadic (non-inherited) CJD can be fatal within months or even weeks (Johnson, 1998). In some people, the symptoms can continue for years. In most patients, these symptoms are followed by involuntary movements and the appearance of an atypical diagnostic electroencephalogram tracing. Most victims die 6 months after initial symptoms appear, often of pneumonia due to impaired coughing reflexes. About 15% of patients survive 2 or more years. The symptoms of CJD are caused by the progressive death of the brain's nerve cells, which is associated with the build-up of abnormal prion proteins forming amyloids. When brain tissue from a CJD patient is examined under a microscope, many tiny holes can be seen where whole areas of nerve cells have died. The word "spongiform" in "transmissible spongiform encephalopathies" refers to the sponge-like appearance of the brain tissue.
https://wn.com/Human_'Mad_Cow_Disease'_(Cjd)_News_Report
Report on New Variant CJD in Eastern England (November 2009)

Report on New Variant CJD in Eastern England (November 2009)

  • Order:
  • Duration: 8:21
  • Updated: 05 Jan 2010
  • views: 2263
videos
Click herehttp://www.foodsafetypolicy.com Variant CJD in Eastern England (November 20009) See www.itvlocal.com/
https://wn.com/Report_On_New_Variant_Cjd_In_Eastern_England_(November_2009)
Report on UK variant CJD in a second genetic type (2008)

Report on UK variant CJD in a second genetic type (2008)

  • Order:
  • Duration: 6:40
  • Updated: 02 Jul 2010
  • views: 634
videos
Click herehttp://www.foodsafetypolicy.com/comment-variant-cjd-in-second-genetic-type to find out more.
https://wn.com/Report_On_UK_Variant_Cjd_In_A_Second_Genetic_Type_(2008)
Confronting CJD & other Prion Disoders ★ Medicine & Surgery Documentary

Confronting CJD & other Prion Disoders ★ Medicine & Surgery Documentary

  • Order:
  • Duration: 59:52
  • Updated: 01 Mar 2017
  • views: 150
videos
We always have to keep in mind that a Documentary, after all, can tell lies and it can tell lies because it lays claim to a form of veracity which fiction doesn't. Some of the documentaries are made just to discredit some particular person, party, organization, system etc, but most of them here on TDF are non biased, without prejudice and worth watching.
https://wn.com/Confronting_Cjd_Other_Prion_Disoders_★_Medicine_Surgery_Documentary
CJD Creutzfeldt-Jakob Disease - Mayo Clinic

CJD Creutzfeldt-Jakob Disease - Mayo Clinic

  • Order:
  • Duration: 2:15
  • Updated: 05 Sep 2012
  • views: 50682
videos
There is a disease that strikes just 300 Americans each year. Yet, it is a nightmare that some have described as a lightening quick version of Alzheimer's & Parkinson's diseases combined. For families losing loved ones, research holds the only hope. Here's Dennis Douda for Medical Edge.
https://wn.com/Cjd_Creutzfeldt_Jakob_Disease_Mayo_Clinic
CJD Brain Killer Documentary

CJD Brain Killer Documentary

  • Order:
  • Duration: 8:22
  • Updated: 04 Jul 2008
  • views: 131959
videos
WTHR from Indianpolis aired this documentary in the Fall of 2006. My brother was Zane Mingus.
https://wn.com/Cjd_Brain_Killer_Documentary
Variant CJD and Hepatitis C Victims - 27th October 2000

Variant CJD and Hepatitis C Victims - 27th October 2000

  • Order:
  • Duration: 2:34
  • Updated: 28 Jan 2011
  • views: 393
videos
Variant CJD and Hepatitis C Victims - 27th October 2000 On 26th October 2000, the official report on how the BSE scandal happened was released - now comes the battle over the level of compensation - it could range from £50,000 to a quarter of a million. Lawyers and families of those who have died or are dying of the human form of BSE, vCJD, will meet Government officials on Wednesday 1st November 2000. Today the victims of another medical disaster - the thousands of Haemophiliacs who've contracted Hepatitis C, have renewed their demands for compensation.
https://wn.com/Variant_Cjd_And_Hepatitis_C_Victims_27Th_October_2000
Creutzfeldt-Jakob disease (CJD)

Creutzfeldt-Jakob disease (CJD)

  • Order:
  • Duration: 2:01
  • Updated: 21 Aug 2008
  • views: 370150
videos
Video of a patient suffering from Creutzfeldt-Jakob disease (CJD). For Doctors - Visit http://doctorshangout.com/video/video/show?id=2002836%3AVideo%3A92991 For Patients - Join http://www.patient.org.in - It is a health based social network of people sharing their disease experiences, treatment options, knowledge and giving support to other people suffering from similar health problems.
https://wn.com/Creutzfeldt_Jakob_Disease_(Cjd)
Human 'Mad Cow Disease' (CJD) News Report No. 2

Human 'Mad Cow Disease' (CJD) News Report No. 2

  • Order:
  • Duration: 3:28
  • Updated: 01 Oct 2013
  • views: 18550
videos
Click herehttp://www.foodsafetypolicy.com On December 2007, at just 24 years of age, Andy Black died after suffering from the human form of mad cow's disease vCJD (variant Creutzfeldt-Jakob Disease). Andy worked in the media producing/researching programmes for talkSPORT Radio, BBC, and ITV. During his terrible last days and at his request Christine Lord made it her mission to find out "Who killed my son?" and with the BBC, she produced a documentary exposing the key players at the centre of the BSE crisis whose actions and decisions led to his untimely and avoidable death. The Documentary is at http://www.youtube.com/watch?v=MAJTr6Nxxa0 Christine Lord, as Andy's mum and a freelance journalist continues to research the scandal - and its links between school meals, (state and independent), baby food, vaccines and medicines. *** Creutzfeldt--Jakob disease or CJD is a degenerative neurological disorder (brain disease) that is incurable and invariably fatal. CJD is at times called a human form of mad cow disease, given that bovine spongiform encephalopathy is believed to be the cause of variant Creutzfeldt--Jakob disease in humans. CJD is the most common among the types of transmissible spongiform encephalopathy found in humans. In CJD, the brain tissue develops holes and takes on a sponge-like texture. This is due to a type of infectious protein called a prion. Prions are misfolded proteins which replicate by converting their properly folded counterparts. The first symptom of CJD is rapidly progressive dementia, leading to memory loss, personality changes and hallucinations. This is accompanied by physical problems such as speech impairment, jerky movements (myoclonus), balance and coordination dysfunction (ataxia), changes in gait, rigid posture, and seizures. The duration of the disease varies greatly, but sporadic (non-inherited) CJD can be fatal within months or even weeks (Johnson, 1998). In some people, the symptoms can continue for years. In most patients, these symptoms are followed by involuntary movements and the appearance of an atypical diagnostic electroencephalogram tracing. Most victims die 6 months after initial symptoms appear, often of pneumonia due to impaired coughing reflexes. About 15% of patients survive 2 or more years. The symptoms of CJD are caused by the progressive death of the brain's nerve cells, which is associated with the build-up of abnormal prion proteins forming amyloids. When brain tissue from a CJD patient is examined under a microscope, many tiny holes can be seen where whole areas of nerve cells have died. The word "spongiform" in "transmissible spongiform encephalopathies" refers to the sponge-like appearance of the brain tissue.
https://wn.com/Human_'Mad_Cow_Disease'_(Cjd)_News_Report_No._2
22 BRANDON LONDER DIAGNOSED WITH CJD at 22 told 6 MONTHS OF LIFE LEFT.

22 BRANDON LONDER DIAGNOSED WITH CJD at 22 told 6 MONTHS OF LIFE LEFT.

  • Order:
  • Duration: 21:34
  • Updated: 15 Dec 2015
  • views: 3138
videos
Brandon Londer was born Nov 19th, 1992. Raised in Buffalo Grove Illinois and attended Stevenson High School. From a young age he had a big heart and made everyone smile around him. His favorite hobbies began to be designing cars, constructing cars, making music and hanging out with his friends, family and cousins. He spent a lot of time with his sister Brittany, who is a God sent and will do anything to support Brandon in this journey to happiness. His mother Karen is a strong willed fighter along with his father Gary who makes the whole world laugh. Brandon has so many friends that I wonder how I could be just like him. I look up to him. I will always. As he got older he picked up playing the guitar and is absolutely amazing! He is a huge Cubs fan and always has been even when he moved to Arizona to attend ASU! Brandon also loves working out! He is excellent at basketball, swimming, golf and other sports as well. Before Brandon was diagnosed with this rare and detrimental disease of Creutzfeldt-Jakob disease he was working with autistic children. There is never a day that goes by that I don't think, "Wow this boy now man is truly amazing." Brandon is also a huge puppy lover. He constantly has dogs surrounding him, he even taught his own dog to stop at the end of the sidewalk and walk without a leash. Brandon also played a huge role at ASU with his fraternity brothers. The bond they continue to share brings tears to my eyes. He was also very close to his grandmother as well. He still brings her up constantly and says how much he misses his Grandma Eileen. Recently Brandon was diagnosed with CDJ. Creutzfeldt-Jakob disease (CJD) is a rare, degenerative, invariably fatal brain disorder. It affects about one person in every one million people per year worldwide; in the United States there are about 300 cases per year. CJD usually appears in later life and runs a rapid course. More Info: http://www.ninds.nih.gov/disorders/cjd/detail_cjd.htm https://www.youcaring.com/brandon-londer-454479#.VjNsiyvdsgX.facebook Currently we are fighting for research and any chance to stop this from happening to him. I love him from the bottom of my heart and I will continue to make everyday as special for him as he has made for me and everyone else. My name is Danielle Zia, and Brandon is my first cousin. We grew up in Buffalo Grove together not more than a couple blocks down. Brittany (his sister) Dylan (my brother) and myself and Brandon were notorious for being a close knit family of our own. Dylan looked to Brittany as a big sister, and Brandon looked to me as his big sister. Vice versa. Today we are all here together in Mesa, Arizona to continue that bond and love forever.
https://wn.com/22_Brandon_Londer_Diagnosed_With_Cjd_At_22_Told_6_Months_Of_Life_Left.
CJD on the NHS

CJD on the NHS

  • Order:
  • Duration: 0:17
  • Updated: 28 Dec 2006
  • views: 3077
videos
It's funny cos it's true. :( http://everythingispointless.blogspot.com/2006/12/cjd-on-nhs.html
https://wn.com/Cjd_On_The_Nhs
Cure CJD: Julie's Story

Cure CJD: Julie's Story

  • Order:
  • Duration: 5:15
  • Updated: 26 Apr 2017
  • views: 579
videos
Creutzfeldt-Jakub Disease, or CJD, is probably something that you've never heard of. But with a mortality rate of 100%, perhaps you should. A rare, degenerative brain condition, CJD is only diagnosed around 100 times a year in the UK. Without a cure, those suffering the disease are usually given just 12 months to live. Julie Robinson was diagnosed with CJD in October 2016, the same month that she was given the all clear from breast cancer. Doctors have given her 12 months to 5 years to live. What makes this even more harrowing, is that Julie has contracted the 'inherited' form of CJD, meaning that her children, Jamie and Jemma, and her young grandchildren are at risk of being diagnosed with the disease. This video features Julie, her husband John, and some of her closest friends, discussing the impact of CJD on their lives. Julie's husband, a firefighter at Buckingham Fire Station, is one of a number of current and former colleagues, and family members who are aiming to raise £25,000 for the Cure CJD Campaign by completing a series of fundraising events, culminating in an endurance kayak - 80 miles in three days from Buckingham to Huntingdon on the River Great Ouse. Please spend a few minutes to watch the video and then share to raise awareness of this horrible disease and hopefully help the Cure CJD Campaign find a cure. To donate, please visit: www.justgiving.com/fundraising/Buckingham-Huntingdon-Kayak
https://wn.com/Cure_Cjd_Julie's_Story
Hyperekplexia as the presenting symptom of Creutzfeldt-Jakob disease

Hyperekplexia as the presenting symptom of Creutzfeldt-Jakob disease

  • Order:
  • Duration: 0:32
  • Updated: 09 Dec 2015
  • views: 10066
videos
We describe a patient with hyperekplexia as the initial presenting symptom in sporadic Creutzfeldt-Jakob disease (CJD). We also demonstrate the utility of the sensitive and highly specific new prion protein amplification assay, real-time quaking-induced conversion (RT-QUIC), which amplifies and detects misfolded β-sheet–rich conformers of the prion protein (PrPsc), in expediting a confident clinical diagnosis of CJD in an atypical case. For more, see: http://cp.neurology.org/content/5/6/498.extract
https://wn.com/Hyperekplexia_As_The_Presenting_Symptom_Of_Creutzfeldt_Jakob_Disease
One in a Million: A CJD Documentary

One in a Million: A CJD Documentary

  • Order:
  • Duration: 1:33:46
  • Updated: 10 Jun 2014
  • views: 7806
videos
https://wn.com/One_In_A_Million_A_Cjd_Documentary
Creutzfeldt-Jakob disease, Human Mad Cow Disease, Kuru, Scrapies, CJD, BSE

Creutzfeldt-Jakob disease, Human Mad Cow Disease, Kuru, Scrapies, CJD, BSE

  • Order:
  • Duration: 52:11
  • Updated: 16 Dec 2016
  • views: 2989
videos
https://wn.com/Creutzfeldt_Jakob_Disease,_Human_Mad_Cow_Disease,_Kuru,_Scrapies,_Cjd,_Bse
A Matter of Time - living with familial CJD

A Matter of Time - living with familial CJD

  • Order:
  • Duration: 3:59
  • Updated: 13 Feb 2017
  • views: 451
videos
https://wn.com/A_Matter_Of_Time_Living_With_Familial_Cjd
Are we moving closer to treating CJD?

Are we moving closer to treating CJD?

  • Order:
  • Duration: 3:11
  • Updated: 24 Jun 2013
  • views: 3378
videos
Until now there has been no cure and those afflicted are guaranteed a slow and painful death. But now scientists have announced that they have made a step towards finding a treatment for Creutzveldt Jacob disease - CJD.
https://wn.com/Are_We_Moving_Closer_To_Treating_Cjd
Creutzfeldt-Jakob Disease Report from 2010

Creutzfeldt-Jakob Disease Report from 2010

  • Order:
  • Duration: 1:35
  • Updated: 12 Sep 2011
  • views: 3107
videos
See http://www.foodsafetypolicy.com CJD Research Campaign from October 2011 Two decades on since BSE or mad cow disease hit the headlines, a father of a victim of its form in humans, new variant CJD, wants the government to maintain research into the degenerative condition. Recent research suggests up to 1 in 1000 people could still be affected. *** Creutzfeldt--Jakob disease or CJD is a degenerative neurological disorder (brain disease) that is incurable and invariably fatal.CJD is at times called a human form of mad cow disease, given that bovine spongiform encephalopathy is believed to be the cause of variant Creutzfeldt--Jakob disease in humans. CJD is the most common among the types of transmissible spongiform encephalopathy found in humans. In CJD, the brain tissue develops holes and takes on a sponge-like texture. This is due to a type of infectious protein called a prion. Prions are misfolded proteins which replicate by converting their properly folded counterparts The first symptom of CJD is rapidly progressive dementia, leading to memory loss, personality changes and hallucinations. This is accompanied by physical problems such as speech impairment, jerky movements (myoclonus), balance and coordination dysfunction (ataxia), changes in gait, rigid posture, and seizures. The duration of the disease varies greatly, but sporadic (non-inherited) CJD can be fatal within months or even weeks (Johnson, 1998). In some people, the symptoms can continue for years. In most patients, these symptoms are followed by involuntary movements and the appearance of an atypical diagnostic electroencephalogram tracing. Most victims die 6 months after initial symptoms appear, often of pneumonia due to impaired coughing reflexes. About 15% of patients survive 2 or more years. The symptoms of CJD are caused by the progressive death of the brain's nerve cells, which is associated with the build-up of abnormal prion proteins forming amyloids. When brain tissue from a CJD patient is examined under a microscope, many tiny holes can be seen where whole areas of nerve cells have died. The word "spongiform" in "transmissible spongiform encephalopathies" refers to the sponge-like appearance of the brain tissue. Cause Transmissible spongiform encephalopathy diseases are caused by prions. The diseases are thus sometimes called prion diseases. Other prion diseases include Gerstmann--Sträussler--Scheinker syndrome (GSS), fatal familial insomnia (FFI) and kuru in humans, as well as bovine spongiform encephalopathy (BSE, commonly known as mad cow disease) in cattle, chronic wasting disease (CWD) in elk and deer, and scrapie in sheep. Alpers' syndrome in infants is also thought to be a transmissible spongiform encephalopathy caused by a prion.
https://wn.com/Creutzfeldt_Jakob_Disease_Report_From_2010
Blood Test Breakthrough for Variant CJD - 13th January 2012

Blood Test Breakthrough for Variant CJD - 13th January 2012

  • Order:
  • Duration: 5:58
  • Updated: 14 Jan 2012
  • views: 3031
videos
Friday 13th January 2012 - Victoria Macdonald - Heath & Social Care Correspondent Christine Lord's website is www.justice4andy.com A blood test for variant CJD is for the first time being offered to patients from around the UK and some from abroad who are suspected of having what was once known as mad cow disease. A notification has been sent to neurologists around the country from the NHS National Prion Clinic and the Medical Research Council's Prion Unit saying that the blood test is now available. Between five and 10 samples a week are now being sent in from here and other countries where there have been cases of vCJD. Professor John Collinge, who has been part of the team developing the blood test, said that so far the test had not produced any false positive results - that is, where a test shows there is infection when there is not. This is a significant step forward in the fight against the disease. Until now the only way of confirming the diagnosis has been through tonsil biopsies during life or after the patient has died and brain samples can be taken. Funding from the Medical Research Council has meant the team has now been able to begin a crucial new phase in assessing the blood test. This involves testing 5,000 anonymous samples from the US, supplied from the American Red Cross. America has low levels of exposure to BSE and the tests will enable the scientists to assess the false positive rate. Prof Collinge said if they find there are a significant number of false positives then "it will be back to the drawing board." If, on the other hand, the test works, then the next step will be to screen 50,000 anonymous UK blood donors which would allow the first accurate assessment of how many people in this country are carrying the disease. Recent studies from tonsil samples show that possibly one in 4,000 people in the UK or 15,000 in total may be infected with the disease, although some tests have put the numbers slightly higher. The latest figures from the Health Protection Agency show that there have so far been 176 definite or probable cases of vCJD from when it was first detected in humans in 1995 until the end of 2011. Variant CJD is a human form of bovine spongiform encephalopathy (BSE) which first emerged in Britain in 1986 as a result of beef offal being fed to cattle. The prions which are responsible for BSE and vCJD were found in the brains, spinal cords and spleens of cows. When the meat was mechanically recovered, and turned into the likes of hamburgers and baby food, the prions entered the human chain. Variant CJD is a cruel disease which causes a form of dementia, affecting both the brain and nervous system. It has a long incubation period and mainly affects young people. The majority of deaths have been in those in their 20s, although there have been exceptions. The development of a possible blood test was announced last February in a scientific paper published in The Lancet. Permission has now been given by UCLH, the hospital trust to which Prof Collinge and his team are attached, to start a clinical evaluation in patients in whom a diagnosis of vCJD is suspected. Currently blood undergoes leukodepletion which involves the removal of the white blood cells. But this does not remove all the prions and there have been several cases of people infected with vCJD after receiving blood products. There have also been cases of people being infected through the use of surgical instruments. It is understood that a 50-year-old woman died from vCJD within the past few weeks after she received a blood transfusion in 2002 - four years after leukodepletion was introduced. "In principle, it may allow us to find how many people in the population are infected so we can target risk management strategies and ensure the safety of our blood supply," he said. "It could also enable us to make an earlier diagnosis and as treatments become available it is going to be desperately important to get to patients early before there is extensive damage to the brain." Christine Lord, whose son Andy died in 2007 from vCJD, told Channel 4 News that the sad thing was that many people thought this disease had gone away. "The importance of a blood test means we would protect people and prevent future deaths," Ms Lord said. "Since my son's death I have visited many more young men and women who are dying with vCJD. It continues to kill on a regular basis. My concern as a Mum who has lost her only son is that no other Mum, Dad or family will go through this. The pain is absolutely unbelievable." Frank Dobson, who was the Health Secretary who introduced leukodepletion, urged the government to provide any necessary future funding.
https://wn.com/Blood_Test_Breakthrough_For_Variant_Cjd_13Th_January_2012
Prion Disease and CJD Vaccination Approaches by Thomas Wisniewski

Prion Disease and CJD Vaccination Approaches by Thomas Wisniewski

  • Order:
  • Duration: 17:48
  • Updated: 03 Sep 2015
  • views: 545
videos
Discussing vaccination approaches for Prion Diseases, CJD, and related disorders, Dr. Thomas Wisniewski sheds light on how to solve the dilemmas of Creutzfeldt-Jakob Disease and similar disorders. Thomas Wisniewski: Professor of neurology, Personal Chair in Clinical Neurology, University of Edinburgh; consultant neurologist, Western General Hospital, Founder and Former director, National CJD Surveillance Unit, United Kingdom, Edinburgh, Scotland. 0:00 - Introduction 0:31 - Conformational Disorders 0:59 - Prion Disease Active Vaccination 2:05 - Salmonella Vaccines for Prion Infection 2:54 - Chronic Wasting Disease (CWD) 5:09 - Saliva Sampling and Tonsillar Biopsy 7:37 - Conclusions of Prion Disease Vaccination 8:01 - Immunotherapeutic Approches for AD 16:12 - Conclusions of Monoclonal Ab Experiments 16:38 - Conformational Disorders (Alzheimer's Disease) Therapy Watch more from this conference at: 2015 CJD Foundation Family Conference Playlist: http://bit.ly/cjd-2015 Individual Presentations: Byron Caughey - Detecting Prions: http://bit.ly/cjd-caughey Glenn Telling - Transgenic Mouse Modeling: http://bit.ly/cjd-telling Thomas Wisniewski - Vaccination Approaches: http://bit.ly/cjd-wisniewski Q&A with Caughey, Telling, Wisniewski, Will: http://bit.ly/cjd-qa1 Jean-Phillipe Deslys: Human Mini-Brains: http://bit.ly/cjd-deslys Julia Moreno: Gerstamann-Straussler Scheinker Syndrome: http://bit.ly/cjd-moreno Chrsitina Sigurdson - Selective Cell Vulnerability: http://bit.ly/cjd-sigurdson Q&A with Deslys, Moreno, Sigurdson, and Knight: http://bit.ly/cjd-qa2 Emiliano Biasini - Pharmacological Chaperones http://bit.ly/cjd-biasini CJD Foundation Website: http://www.CJDFoundation.org Subscribe: https://goo.gl/hRMXAp -- "Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. They first came to public attention in the mid 1980s in the form of the BSE epidemic in the United Kingdom. BSE (bovine spongiform encephalopathy) is a prion disease in cattle. Tissue from infected animals may have contaminated cattle feed, leading to the silent spread of the BSE epidemic. There is also a theory that BSE came from feed contaminated with scrapie, the long established sheep prion disease. Inevitably, concern over whether BSE could pass to humans mounted. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per year. In the United States this translates to 250-300 new cases per year. It is well known that CJD is very difficult to diagnose leading to speculation that the one case per million report may be incorrect. Most of the cases are "classical" or "sporadic" CJD (sCJD), occurring for no, as yet, known reason. The sporadic form accounts for approximately 85% of the cases, the familial form approximately 15%. There have also been a few cases which have occurred from contamination via medical procedures; this type is known as iatrogenic or Acquired CJD. Finally over the last few years, another type of Acquired CJD called variant (vCJD) has been identified in young people. CJD has been linked to ingestion of beef tainted with BSE (bovine spongiform encephalopathy), most cases have occurred in the United Kingdom." -- Information Provided by: http://www.cjdfoundation.org/about-cjd
https://wn.com/Prion_Disease_And_Cjd_Vaccination_Approaches_By_Thomas_Wisniewski
CJD- Looking For Me (Official Video)

CJD- Looking For Me (Official Video)

  • Order:
  • Duration: 3:33
  • Updated: 12 Aug 2016
  • views: 1044
videos
You can keep up with CJD, for new music, and upcoming shows on the following social media outlets!! (Facebook) https://www.facebook.com/CjDunx (Instagram) @official__CJD & @iamcjdunxx (Twitter) https://twitter.com/dunxvskwad (Sound Cloud) https://m.soundcloud.com/officialcjd Recorded and mastered by: Instagram @ tc.el.control.total Twitter : @ elcontroltotal Soundcloud.com/tcnmi Facebook.com/tcnmi Directed / Filmed / Edited by: Cesar Loza Instagram: @mcloza89
https://wn.com/Cjd_Looking_For_Me_(Official_Video)
How might antibody treatment work for Creutzfeldt-Jakob disease

How might antibody treatment work for Creutzfeldt-Jakob disease

  • Order:
  • Duration: 2:36
  • Updated: 04 Oct 2016
  • views: 1187
videos
Creutzfeldt-Jakob disease (CJD) is a fatal brain condition with about 100 new cases in the UK every year. There is currently no cure but every day scientists and doctors are getting closer to finding a treatment. This video explains how a novel antibody treatment might work. The development of this antibody treatment is supported by the Cure CJD Campaign. For further information on the Cure CJD Campaign, please see: http://www.curecjd.org/ To donate to the Cure CJD Campaign, please visit: https://www.justgiving.com/cure-cjd
https://wn.com/How_Might_Antibody_Treatment_Work_For_Creutzfeldt_Jakob_Disease
TRAILER #1 FOR "ONE IN A MILLION: A CJD DOCUMENTARY"

TRAILER #1 FOR "ONE IN A MILLION: A CJD DOCUMENTARY"

  • Order:
  • Duration: 2:15
  • Updated: 10 Jul 2013
  • views: 24248
videos
I am making a documentary about Creutzfeld-Jakob Disease. I am shooting and editing it myself while I am getting tested for the genetic mutation that killed my grandfather and just this year - my mother. Along the way, I will meet the doctors and researchers working to find a cure for this untreatable, 100% fatal brain disease. I will also meet other families that have suffered the painful loss of their loved ones to this cruel disease.
https://wn.com/Trailer_1_For_One_In_A_Million_A_Cjd_Documentary
Creutzfeldt-Jakob Disease (CJD) Q&A | Byron Caughey, Glenn Telling, Thomas Wisniewski, Robert Will

Creutzfeldt-Jakob Disease (CJD) Q&A | Byron Caughey, Glenn Telling, Thomas Wisniewski, Robert Will

  • Order:
  • Duration: 37:33
  • Updated: 03 Sep 2015
  • views: 715
videos
During the Creutzfeldt-Jakob Disease (CJD) question and answer discussion board, leading experts on Prion Disease and similar disorders comment on what CJD is, discuss vaccination approaches to Prion Disease and talk about other aspects of Creutzfeldt-Jakob disease. Prion Disease and CJD Discussion Board: Byron Caughey, Glenn Telling, Thomas Wisniewski, and Robert Will 0:34 - Testing CJD Disease Results 1:31 - Creutzfeldt-Jakob Disease Test Turnout Time 5:00 - CJD Infection Analysis 8:42 - Pre-CJD Symptoms 14:11 - CWD Prevention 22:35 - CWD Immunity 27:24 - How to Detect CWD and Related Diseases 31:01 - Early Detection of CJD and Prion Disease 36:37 - Learning About CJD Through Similar Diseases -- Watch more from this conference at: 2015 CJD Foundation Family Conference Playlist: http://bit.ly/cjd-2015 Individual Presentations: Byron Caughey - Detecting Prions: http://bit.ly/cjd-caughey Glenn Telling - Transgenic Mouse Modeling: http://bit.ly/cjd-telling Thomas Wisniewski - Vaccination Approaches: http://bit.ly/cjd-wisniewski Q&A with Caughey, Telling, Wisniewski, Will: http://bit.ly/cjd-qa1 Jean-Phillipe Deslys: Human Mini-Brains: http://bit.ly/cjd-deslys Julia Moreno: Gerstamann-Straussler Scheinker Syndrome: http://bit.ly/cjd-moreno Chrsitina Sigurdson - Selective Cell Vulnerability: http://bit.ly/cjd-sigurdson Q&A with Deslys, Moreno, Sigurdson, and Knight: http://bit.ly/cjd-qa2 Emiliano Biasini - Pharmacological Chaperones http://bit.ly/cjd-biasini CJD Foundation Website: http://www.CJDFoundation.org Subscribe: https://goo.gl/hRMXAp -- "Prion diseases are a group of rare, invariably fatal brain disorders which occur both in humans and certain animals. They first came to public attention in the mid 1980s in the form of the BSE epidemic in the United Kingdom. BSE (bovine spongiform encephalopathy) is a prion disease in cattle. Tissue from infected animals may have contaminated cattle feed, leading to the silent spread of the BSE epidemic. There is also a theory that BSE came from feed contaminated with scrapie, the long established sheep prion disease. Inevitably, concern over whether BSE could pass to humans mounted. In humans the best known of the prion diseases is Creutzfeldt-Jakob Disease (CJD), which reportedly affects around one person per million per year. In the United States this translates to 250-300 new cases per year. It is well known that CJD is very difficult to diagnose leading to speculation that the one case per million report may be incorrect. Most of the cases are "classical" or "sporadic" CJD (sCJD), occurring for no, as yet, known reason. The sporadic form accounts for approximately 85% of the cases, the familial form approximately 15%. There have also been a few cases which have occurred from contamination via medical procedures; this type is known as iatrogenic or Acquired CJD. Finally over the last few years, another type of Acquired CJD called variant (vCJD) has been identified in young people. CJD has been linked to ingestion of beef tainted with BSE (bovine spongiform encephalopathy), most cases have occurred in the United Kingdom." -- Information Provided by: http://www.cjdfoundation.org/about-cjd
https://wn.com/Creutzfeldt_Jakob_Disease_(Cjd)_Q_A_|_Byron_Caughey,_Glenn_Telling,_Thomas_Wisniewski,_Robert_Will